Coming off Mirapex

[blues_cat]

Hi folks, I was on Mirapex since 1998 and just came off about 10 days ago. I thought I was losing my mind, no sleep, feeling right out of it. My Doc put me on quinine sulphate 200 msg and that didn’t seem to be working so last night I took two doses of CBD, 150 mgs each, and I actually slept off and on for about 5 hours. I’m going to keep on with it so see how if it helps. I’ll keep you posted.

[Madlegs1]

Well done in getting off the Mirapex. Some achievement.

Good luck with the CBD . What sort is it, strength etc? All info very welcome.

Cheers.

BTW- quinine is not recommended for rls, does not work, and is actually dangerous for dicky hearts. Tell your dr.🤔

[blues_cat in reply to Madlegs1]

20.89ml CBD.

[Brica]

I had the same reaction and had become a compulsive gambler as well. Does not happen to everyone ( 1of5 ). Tramadol helped me with the withdrawal and Gamblers anon. saved me from addiction. I am now on iron supplementation; found a MD through the RLS Foundation. Some persons with RLS have an iron deficiency even though blood values are normal; needs to be monitored by someone who knows current therapy. Do not give up; I had to do my own research before I found Dr. Risk in Marlboro. He has my permission to use his name. Brica

[Walras in reply to Brica]

Could you give more information on how you are supplementing with iron and what your ferritin level was before and after treatment?

[Brica in reply to Walras]

Walrus, I began taking Slow Fe 45 mgm. 4xday. At that time my iron was 57(av. Is 35-175) - may, 1918. I gradually decreased ( under Dr. Risk’s supervision) to 2xday. My serum iron is now 139, Ferritin is 148 (av. Is 20.0-288.0). I am also taking Klonopin 2 mgm, at night ( a few hrs. between 1-2 mgm. dose. I have gone from 24hrs/day with RLS to almost none and they are mild. Apparently if a person had RLS at an early age, they are more prone to have a problem with iron transportation to other parts of the body (Ferritin). This applies to me; important to be treated by an MD who knows about RLS and current research findings. Johns Hopkins and Mass. General are leaders in this research in the U.S.

I hope this is helpful, Brica

[luckykarin]

I am also coming off of this. I stopped cold turkey. I am going insane. I have been on it since 2007. Stopped working, gambling issues, etc. I am taking L-tyrosine and GABA to try and help with the DAWS. Dopamine Agonist Withdrawal Syndrome. i wake up with full blown anxiety every morning. Knot in my stomach, chest racing and hot. I cant function doing day to day things. It is hell. I wish everyone well that can get off of these meds.