restless leg&pain: I Had RLS Most of my... - Restless Legs Syn...

Restless Legs Syndrome
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restless leg&pain

Karen81469
Karen81469

I Had RLS Most of my life. my Mother had it too. lately it has been so bad that I already have bursitis and arthritis in both my knees and it cause me more pain. I Have tried everything meditation for my restless legs from doctor and in the drug store. I even try socking in a hot eps salt bath. the only thing that helps ease the my legs or the pain is getting out of bed in the middle of the night and walk around for a hour, but I Still not sleeping. PLEASE HELP ME.

Thank you

24 Replies
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Karen, I too have bursitis, my GP took me off opioids without warning and that is when I developed the bursitis. My neurologist (took two months to get appointment) was angry and immediately put me back on 5 mg two times per day (which I take starting around 7pm and again around midnight). It is the only medication that works for me after trying all the dopamine agonists and other neuro drugs. I hope you can find someone who will prescribe something similar for you

Karen81469
Karen81469
in reply to Hoffie

Thank you

I can't have codeine so the doctor gives me 800 mg of Ibuproen. I Take twice a day. it help until my legs start on me and it's starting to happen in the day time now.

Hoffie
Hoffie
in reply to Karen81469

I take oxycodone straight. Some opioids have tylenol or other pain meds included but mine is just the oxy.

Hi are you on any meds for RLS now ?

Do you take any other meds for anything else apart from the Ibuprofen ? X

Karen81469
Karen81469
in reply to Pippins2

The doctor gave me Hydroyzine pamoate 25 mg, but it don't help. plus i'm on blood pressure,cholesterol and anxiety medication

Don’t mean to sound over simplistic.... but powdered Magnesium Citrate in a glass of water before bed has nearly rendered my RLS a non issue. My RLS is also heridatry and was quite severe for the last 35 years. I began taking the mag citrate this past February.

Leelee49
Leelee49
in reply to Jphickory

I’ve recently started using this, and yes, it helps a great deal, I do still get rls, but nowhere near as bad as it was. The only downside is the after effects, the runs. But I’d rather have that for half an hr than rls all day and night.

kel12345
kel12345
in reply to Jphickory

How did you learn about the taking of powdered magnesium citrate? Can I buy it on Amazon?

Jphickory
Jphickory
in reply to kel12345

As far as finding out about magnesium citrate.... I went into a supplement store last February purely out of desperation due to lack of sleep from my RLS. I told the clerk why I was there and she recommended the magnesium citrate and another product that I have never opened. (I wanted to try one at a time so if I had any benefit I would know what product was responsible). The magnesium citrate she recommended is a product called Natural Calm. I happened to purchase the orange flavor as it comes in several flavors.

I mix a level teaspoon with water in the evening before bed. That seems to be about the right amount for me. (A couple times I took more than that and about 1/2 hour later had an upset stomach and the associated bowel disturbance). On occasion I will still wake during the night with RLS and get up and take another level teaspoon. This has almost always remedied the problem. It’s interesting to note... when I take the magnesium citrate when I have active RLS... I feel a unusual feeling in my leg as the RLS subsides. It’s a good feeling and I would describe it as sort of a warm prickly feeling. It’s lasts for about 10 minutes or so. I realize everyone is different but I hope it helps you. I’m sleeping very well now. Before taking this product it wasn’t uncommon for me to lay awake for 3 or 4 hours in discomfort from my RLS. Thank you

kel12345
kel12345
in reply to Jphickory

THANK YOU SO VERY MUCH FOR TAKING THE TIME TO REPLY. I just started taking RESTAVIN drops, so I will see if there is any relief. If not, I'll try the magnesium citrate.

Jphickory
Jphickory
in reply to kel12345

You are very welcome. It’s good to have a place where we can all try and help each other.

Hydroyzine is an antihistamine and can make RLS much worse .Also some anxiety meds can do too .Which one do you take ? X

Karen81469
Karen81469
in reply to Pippins2

I take once a Sertraline HCL 50mg supposedly is a substitute for Zoloft 50 milligrams

Pippins2
Pippins2
in reply to Karen81469

Setraline will make RLS worse x

kel12345
kel12345
in reply to Pippins2

I take hydrOXYzine PAM 25 mg. for anxiety, a couple times a week. Should I STOP taking it? Thank you!

kel12345
kel12345
in reply to kel12345

Pippins2,

I also take LOSARTAN POTASSIUM 100 mg and lipitor 40 mg. Are either of these bad for RLS? I have RLS, non-stop shaking legs, day and evening, when I sit and lay down. BUT I CAN GO TO SLEEP.

I have this habit sitting Indian style because I'm only 5ft 1inc and I can't stand for my legs to hange. Can that make it wore? plus I have poor blood circulation.

Pippins2
Pippins2
in reply to Karen81469

I doubt it. You almost certainlyhave Primary ( genetic ) type of RLS as your mother had it. You are taking 2 meds which will worsen RLS. I would go to your GP and switch your antihistamine to Clarytin /Claritin or Allegra which are ok for RLS. Your anxiety med will need to be changed too but that may be more difficult to switch but Clonazepam treats RLS and is ok to take with RLS and may help your legs a little. I would suggest you ask your GP for a painkiller to help with RLS such as Codeine or Tramadol or alternatively Pregablin or Gabapentin

If you get no joy ask to be referred to a Neurologist

Get your ferritin iron levels tested it needs to be over 100 which is much higher than that needed for someone who doesn't have RLS x

Good to know about the ferritin. Mine has been on the low side of recommended but I didn't know it needed to be higher for someone with RLS.

kel12345
kel12345
in reply to Pippins2

I take gabapentin for "numb" thigh problem, 600 mg. at night. It really helped. But now I have RLS even after I've taken it for over a year. Does it help RLS if I take heavier dosages? Or is it bad for RLS symptoms?

Hidden
Hidden

You are on cholesterol meds? RLS is a side effect of those. And actually no one needs the stuff. We need cholesterol, and the whole cholesterol/heart theory is being proven wrong. It is just a giant cash cow for drug companies and the doctors that take their kickbacks. Check out Stopped Our Statins on Facebook if you are interested.

Can you make another appointment with your doctor? There are a million folk remedies and magnesium (which I count as an actual remedy) and I find some of them work sometimes but the only thing that really gets the RLS to behave is Neurontin (gabapentin). Your doctor should have no trouble prescribing it. It's not without its issues but it was the only thing that worked for me. You should look into it and see what your doc thinks. I have a very love/hate relationship with it but I have severe RLS too.

I want to thank you all for your help. I still have RLS, but not as bad as I been having it. I quit taking my cholesterol medicine and the medicine they gave me for my legs it has truly at ease on me. I'm still taking my blood pressure medicine and my anxiety medicine I really do need those too. I am about to have my first grandbaby in February and I have to quit smoking so I definitely need those medicines

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