Hi there all, I have lurked on this forum for ages but not posted much.
I am 67, live in the UK and suffered from RLS since I was in my 20s. For years I didn't know what it was but was able to sway it off with self-help procedures such as hot baths, massage and rocking. These methods were not enough after a while. Then I looked on the internet and discovered I had classic symptoms of RLS. At that time there was nothing licensed for it in the UK and the only thing that gave me any relief was codeine. I lived in Spain at this time and you could buy it over the counter, but I didn't like to take it too often for obvious reasons.
Roll forward to 2007, my symptoms were so bad I was getting no sleep for days at a time and my quality of life was suffering greatly. Then I discovered that ropinirole had been licensed. I saw my GP in England and he prescribed it.
The relief was indescribable and although I had to up the dose, I was on it for eight years before getting much in the way of augmentation,but then it became less effective and I was back to getting no sleep again.
I went to see a neurologist who prescribed gabapentin to take with the ropinirole (and gave me a formal diagnosis, the first time I had had one!) and I have now been able to cut back my ropinirole to 2mg from 3mg and also take 800mg gabapentin. I also take iron and vitamin D because a deficiency was found in these things and they can have an effect on RLS.
I am at the moment stable but the medication is still under review, with a view to coming off the ropinirole altogether and just having the gabapentin.
Hope this helps someone.