RLS going through the roof

[bedith6]

I have recently been diagnosed with macular degeneration( as if I haven't enough to worry me with RLS) and I have been taking a recommended gel capsule to help the macular in the eye. The capsules contain Lutein with Zeaxathin and since taking them my RLS has got so much worse day and night. Does anyone know of these drugs and if they are likely to cause a worsening of RLS or is it an unlucky (for me) coincidence?

[Pippins2]

Hi Bedith sorry you are suffering.I have never heard of these ingredients.I will contact Nightdancer ,not much she doesnt know about what affects RLS x

[bedith6 in reply to Pippins2]

Thanks Pippinsx

[nightdancer]

HI, I have never, ever heard of those meds making RLS worse. Give me a minute, and will find out for sure.

[nightdancer]

Zeaxathin is the main ingredient from a green plant that helps promote eye health, and comes from beta carotene. So, I see nothing going on with this whatsoever that could be connected to worsened RLS. They can barely list any side effects from this. So, whatever is going, am sorry about your eyes, but the new thing you are taking is not or cannot make RLS worse.

[nightdancer]

and Lutein sure is not going to bother you either. it is for help to the retina. How long, how many days has your RLS been worse?

[bedith6 in reply to nightdancer]

Thanks for your help nightdancer. It has got worse over the last month coinciding with how long I have been taking the Lutein capsules, so that is why I wondered if there might be a connection. I don't know what else I'm doing differently to cause such a surge in my RLS unless my body has got used to the Tramadol. I take four over about 4 hours from about 5.oo to 8.oo and was usually getting some peace for the evening and able to sleep with only one or two episodes of RLS. at night. Now it is bothering me all day and little sleep at night.

[ironbrain]

I've taken them for a few years (not stopped me from getting a retinopathy or WMD, whatever it is in my case) and not associated them with any problem with RLS.

[Hidden]

I know you wrote ages ago, but I hope you see this so you don't think you're crazy. My RLS, which had been stable for a while with meds, went through the roof too, and it was only when I was up until 4 a.m. one night (morning!) that I thought back to what had changed. It was the 20mg lutein/4 mgs zeaxanthin I began taking after my diagnosis with macular degeneration. I immediately stopped the supplement, with some reduction in intensity of symptoms, but a week later cut back on the foods rich in these substances that I had also increased. Two months out, I'm STILL not back to where I was. Argggh! So even if no one who answered yet could support that there could be a connection, I am convinced there is. And because supplements don't get tested, there's really no way to prove it one way or the other. I just can't imagine what else it could have been in my case. Good luck!