Sorry if you are tired of hearing about this.
As you know I have been lucky to get relief through diets.
I adopted the FODMAP diet and got (say) 80% relief.
Tried the Low Chemical diet and have had 100% relief when I have stuck to it.
In both diets I have had trouble expanding the types of food I can eat but I think I am getting a reasonably healthy diet whilst adhering to the basic exclusion diet. I eat a lot of rice and a lot of Uncle Toby's oats.
I also take iron biglysinide before going to bed. When I wasn't on the diet this didnt help. Now I'm not game to stop the iron in case it plunges me back to the bad old nights. I also take glucosamine and fish oil for arthritus.
About 6 weeks ago I went to Thailand and decided I would rather taste the local gooddies than sleep all night. For three weeks I ate what I liked except I avoided some of the onions and garlic I was offered. Zero RLS Arrived home expecting an immediate relapse so I (sort of) adhered to the diet. Still no RLS except for a couple of occasions that have driven me back to the diet.
Fully back on the diet and so far zero RLS.
On one occasion before Thailand I went to a special party held by an excellent German cook and after a good start decided to throw away a few nights sleep and enjoy the food. Again I had no RLS after that.
I have a theory that this might indicate that my problem is with chemicals. When you start a chemical diet its usual for whatever you are suffering to get worse for the first few days and then start to improve until you are symptom free. Hence there is a delay in the response. So what I am hoping is that if I stick to the diet I can accept the occasional exceptions and enjoy any special event that turns up. This also encourages me to continue challenging my body with small serves of different foods.
I think this is good news for the lucky ones and encouragement to give a diet a chance, in case you are among the lucky ones.
I think that even if the drugs are working for you now it would be a good idea to try the diet. I don't know, yet, how long the diet will keep working so you might be glad to have the drugs as an alternative as you get older.