A miracle

[sandieangels]

Hi everyone suffering with restless leg and limb I have it in my arms and legs. Uncontrollable movements. I found the perfect solution. Go to your doctor 😷 ask for prameipexole tablets. They are for people with parkin sons, but they are a miracle. Let me know how it goes. I hope this helps. Xxx

[Madlegs1]

Oh Sandie , Sandie, Sandie- where have you been akl our lives?

You are very good to share your excited discovery with us.

However - I have to tell you that we already are well familiar with Pramipexol and its benefits and dangers.

I suggest you read a bit on this site going back just for a week or two , and you will find out all you need to know about that incredible medication.

Thanks again. And welcome.

[SLMCP in reply to Madlegs1]

Rather sarcastic. ...

[Joolsg]

Oh Sandieangels,

Thanks for sharing but, sadly, most of us on here know all about pramipexole tablets. They do indeed seem miraculous when you first discover them BUT they then turn round and bite you on the backside big time. Look up Augmentation and Pramipexole in the search engine and you'll see what madlegs and I mean.

However, as it's working for you now, that's brilliant and long may it continue. If it stops working, be careful about increasing the dose- just be careful about Augmentation.

Take care,

Jools

[Beckonwood in reply to Joolsg]

I so agree I was on it also and they worked for several years. During those years I kept increasing the meds and finally on this site found out about the rebound effect and stopped them. I know only take Percocet and that seems to help. Taking an opioid can be tough because of the heavy drug abuse among so ,many people. I have developed a great relationship with my doctor and he is willing to work with me. I have to see him on a monthly basis in order to get the prescription and he has to document our visits. He wanted me to try Tramadol which I am going to start next week to see if it works as good as Percocet. Even though its a pain medication apparently its not as strong as Percocet.

[Hidden]

Thanks sandie, bit as has been said most of us on here know all about Pramipexole. And your doctor probably doesnt know THIS info, but do not let your doctor give you a dosage more than two tablets.

[SLMCP in reply to Hidden]

I am on 2 x 188 mcg and my consultant is happy to up it to x 3 if needs be and I would be happy too if it meant the drug still worked....

[Madlegs1 in reply to SLMCP]

That's quite a high dose- I would consider reporting your consultant to the medical council.

( and that IS being sarcastic)

😎

[Hidden in reply to SLMCP]

The dose recommended by the RLS experts is no higher than 2 pills at 0.088mgs of pramipexole. if you needed to take more, than that is a sign of augmentation. The pills will work fine every time you up a dose, but only for a while, then you will find it needs increasing again. I am only forwarding to you information about this med to make you aware. Just reading some of the other members posts on here, you will see what a nightmare they have gone through, when their dose has gone to high.

[SLMCP in reply to Hidden]

Thank you. I have been on this dose from September last year and have no plans to increase it if they continue to give me the amount of sleep I am getting. But ....... if needs must.

[Hidden]

Just for parkin sons no parkin daughters

Delighted its working for you. Please make yourself familiar with the side-effects and augmentation, better knowing that sooner rather than later!

Take care.

[Bkc1777]

Hi,

I would never suggest that stuff to anybody! Gives you evil side effects and the withdrawal symptoms were hell

Please try to stay on the lowest dosage as much as you can.

Glad you find the miracle that works for you though.

Welcome on board

B.

[SLMCP in reply to Bkc1777]

I am ' lucky' that I haven't experienced any side effects so far, just some good sleep.

[NoMoRLS]

For me they gave me awful side effects but many others here have benefited...and some have augmented. Keep reading posts and welcome. Glad you are cindi g relief.

[Eryl]

I'd prefer to find the cause of the RLS, rather than take something artificial that has side effects just to mask it. I've found that avoiding certain foods does it for me. I.e. Nothing containing E202 artificial preservative. Keeping caffeine levels low, and I have been investigating chillies, but initial signs are inconclusive.

[Jaywell in reply to Eryl]

My triggers are caffeine, wine and standing still for long periods. Always get rls when I am very tired and then it's a vicious circle.

[SLMCP in reply to Eryl]

I wish my RLS was caused by food....

[Bee27]

Fish is mine and having to sit still! I'm investigating cutting out eggs at the moment! I'll end up eating just lettuce!

[involuntarydancer]

In contrast to you purists who seek the holy grail of understanding, I really miss the simplicity of the mirapexin days. One tablet (then two, three ... lots) and no symptoms - no questions asked, no understanding needed. It was bliss for me. 10 years of bliss. Then the abyss of augmentation and the absorbing, unsatisfactory world of post-augmentation treatment. I have all my hopes pinned on the latest research seeking a dopamine agonist that does not cause augmentation.

[PeNy]

Many thanks - I'll add it to my repertoire! Molly.

[Jeanniebeannie]

Hi tes pramipexoles ok but still get rls quite bad at times but also what works for one doesnt for another great to start with but as time goes on you take more and more do b wary .

[Jeanniebeannie]

Soz meant yes not tess.

[Eryl in reply to Jeanniebeannie]

you can edit your own posts by clicking on the symbol in the box next to the 'like' box, and selecting 'edit' from the options

[SLMCP]

Am currently on them along with Codeine and they are doing a good job at night although I still get RLS symptoms in the day...

[Cantstopwontstop]

I have used Pramipexole for eight years. Works great when it works but augmentation is a major factor. Plan to take breaks from it and have a backup for those times. Cannabis works best for me.

[SLMCP in reply to Cantstopwontstop]

WhaT dose are you on Cantstopwontstop? How often do you take a break (very brave if you) and for how long each time? Is cannabis your only other choice and how does it affect you generally? Thank you.

[Cantstopwontstop in reply to SLMCP]

Hi SLMCP , I was most recently taking Mirapex .75 ER and .375 ER at bedtime. I have been off it for a week now. It has been difficult and I've had a few freak out moments where I didn't know if I was going to make it. But, I have had less pain and movement the past three days. As for Cannabis, I do feel a little spacey but I have not found anything else that provides immediate relief of pain (I get full body convulsive pain when it is on in full force). However, I personally tolerate the body sensation from Cannabis much better than those feelings that come from opiates of benzodiazepines.

[SLMCP]

Thank you. What 'motivates' you to have these breaks? Very brave of you.

[rkatt]

Have been taking .18 Prami tabs for a year with -OMG - wonderful results. My life was being shredded. Was also prescribed Gabapentin, which helped too. I've cut the P down to three quarters of a tablet because it was suppressing my sex drive and slightly blunting my joy in life. Also to preserve it's effectiveness and have dropped the Gaba for similar reasons. I supplement with Cannabis, Kratom and Co-Codamol. Also take Tramadol infrequently. My game-plan is to prolong the effectiveness of what's on offer until Google 'solves' RLS (joke). Or John Hopkins Hospital does. Triggers for me are frustration, stress, red wine and maybe chillies.