Hi, I'm Lorrinet. I've already posted this, but in a different place called 'How to become an RLS expert'. I'm not very good with forums). So I'll repeat it here:
I've suffered RLS (in ALL areas, including shoulders) for around 40 years. My life has been awful. Over that time I've seen every therapist you can name, both private and NHS, to no avail. One psychologist said I was depressed and gave me anti-Ds, which made it worse. I still have a letter I wrote to myself (while throwing my limbs around) around 4am some 25 years ago, in which I gave myself permission to end my suffering when my children were older and independent. They would still have their dad, I reasoned.
About 18 years ago as a mature student I did a BA(hons) degree in Illustration, and I managed this only thanks to Cannabis, which cost a fortune over the two years I used it. Then, one day my son had a motor-cycle accident and broke his wrist, and the hospital gave him three Dihydrocodeine tablets to bring home. He didn't want them, so i took two when i went to bed - and wow! I had my first peaceful night in decades.
Doctors at the time were insisting I didn't have RLS because "you can only get it in your legs and you have it in your arms too". So, I searched the net and found that around 20% of those most severely afflicted get it in the arms too. Back I went to my GP armed with many pages of info and, to her credit, she read it all, then sent me to a 'specialist' in RLS, who advised her to give me Dihydrocodeine for as long as it worked. That was about 16 years ago and I'm still taking it. She told me that 8 tabs per day was the absolute most I could take, and in fact i've never taken more than 7 in a day. Of course, these are controlled drugs (opiates) but I have never abused them. They saved my life; without them I would have left this life years ago.
One problem I've had is that many pharmacies only have the Dihydrocodeine produced by Bristol Laboritories - and they do not work so well as those from other labs so I need extra. They insist they're all the same, but they're not.
A few months ago my GP put me on 75mg dose per day of Dispersible Aspirin for an unrelated condition. Since then, my bed-time dose of Dihydrocodeine lasts just two hours before my RLS returns, but only in my left foot and with tremendous vibration. I won't overdose, so am forced to get up around 3am for at least an hour before I take more and return to bed. Consequently, I am taking more Dihydrocodeine. This is happening every single night.
My question is, does anyone on here know whether it's the Aspirin making this happen? I know I can't take statins and other medications.