Hi everyone, just home for a break from caring for my mum so thought i would check in. Thankyou to those members who sent me messages of support and thanks to Elisse for letting everyone know where I had disappeared to.
Its a very difficult situation as my mum who has been showing some signs of memory loss over the last 18 months has deteriorated quite rapidly recently so we can't deny it any longer she definitely has dementia. Until all the tests are completed we don't know which type she has yet. Early testing shows "moderate dementia " On top of that she has Shingles which are very painful. I am spending the majority of my time with her to ensure she eats and is safe (she has taken to wandering )
At her GP appointment last week the doctor suggested Amitriptyline to help with the Shingles pain and to help her sleep. Naturally I voiced my concerns as my mum used to have RLS (which miraculously stopped bothering her when she was aged 80) The GP assured me that as she hasn't had RLS in years she would be fine. I wasn't convinced but my mum wanted to give it a go as she was desperate for a good nights sleep. Against my better judgement she took the Amitriptyline at 10 pm and got straight into bed
Well by midnight all hell let loose. She had the worst RLS and PLMD of her life, both legs, both arms and in her hips. This frail 87 year old lady was in terrible pain from the Shingles, drowsy from the medication and I had to spend all night walking her around the bedroom and rubbing her legs, she was in tears.
This was after 7 years free of RLS and one tiny 10 mg of Amitriptyline caused this reaction. I got in touch with the GP and let rip! ! Why ever do they insist on prescribing this med for RLS? ??,,I have "met "literally thousands of RLS sufferers over the years and know of maybe 10 - 15 who can tolerate this med. For vast majority of us it is POISON.
Anyway it took around 24 hours for my mums legs to calm down and she is now taking Codeine for the Shingles pain which is gradually improving
The dementia of course will only get worse and I don't think she will be able to stay in her own home long term but for now I am doing my best to keep her safe, my brother is doing his bit too but he works full time so is limited as to how much support he can offer, Mentally it is very stressful (when you have just answered the same question for the 50th time lol) .! I a ploughing my way through a mountain of paperwork as everything is muddled and her finances are in a mess. I do feel that I have made some headway though this week and she has signed the relevant papers to allow her medical conditions to be discussed with me which is a big help because of patient confidentiality rules.
The first thing I did was have doctors put on her notes was NO AMITRIPTYLINE EVER.
There's no Internet connection at my mums house but I will check in once in a while when I come home to renew my batteries!
Wishing peaceful nights to you all