The rls patch: I know people have wrote... - Restless Legs Syn...

Restless Legs Syndrome

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The rls patch

beady3 profile image
18 Replies

I know people have wrote about the plaster affecting you skin but I can't find it,can someone tell me what to put on when I take the plaster off as it's very red the skin isn't broken ,why should it happen after 2months of nothing thanks

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beady3 profile image
beady3
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18 Replies
connie50 profile image
connie50

hi beady3 have you tried putting Vaseline on first up to know haven't had that experience

Bettyboop45 profile image
Bettyboop45 in reply toconnie50

Never knew you could stick one there ? I might try it 😀

macewan13 profile image
macewan13

I am about to restart the patch after having to give it up because of blistering. The neurologist suggested I try it on the sole of my foot because the skin is tougher there,

I must be very lucky because although my skin reddens after I have removed the patch I shower and all is good. It says not to use the same patch of skin for 14 days and at the beginning I was very strict in this actually drawing out where they were going.

Unfortunately as I have ME I tend to forget I am wearing them or where I am wearing them so sometimes I put it on the same spot or leave it on for two days instead of 1!

I would imagine coconut oil would be good, (it seems to do everything - I am sure I read a story about someone who grew back a leg just rubbing the oil on their stump :) ), or the likes of sudocrem or calomine lotion, E45 would likely do too, ( I think Vaseline is more a barrier cream in my opinion and although might be useful I know it doesn't allow the skin to breathe as well as the others).

Are you using it on the more sensitive areas of your body? I find it worse on the inner aspect of the arm and the sides of my torso. I use my upper outer arms, (although one has a tattoo and it them may only be my madness but I don't think they work as well through) mostly with the inner bit next, (as said it does redden more there but not as bad as torso and it soon goes away for me). The tougher the skin the less reddening I'd imagine.

Good luck.

beady3 profile image
beady3 in reply to

Well Raffs at last I am asking you a question,does the patch make you tired and dizzy I think it makes me both I have to have a sleep and I keep getting dizzy , just don't feel good, but that's he price I pay not to have rls ,do they make a difference to you thanks x

in reply tobeady3

I don't think so! I suffer with ME so am tired all the time anyway, not had any dizziness.

How long are you on them? A lot of side-effects ease in time so hopefully if they are new/relatively new to you it will pass soon.

beady3 profile image
beady3 in reply to

My daughter has M E so I know just what you are going through ,I have been on the patch for about 2months,thanks for reply Raffs

in reply tobeady3

Two months is still early days regarding side-effects imo, fingers crossed the dizziness and sleepiness goes.

What dose are you on, is there room to move down the dosage?

beady3 profile image
beady3 in reply to

Morning I am on 2mg patch I was on 1 mg but didn't work ,have a nice day

in reply tobeady3

I started at 1mg doing nothing but definitely getting results from 2mg, (forgot to change patch last night and only realised at 5am after a night of tossing and turning - I dread to think how bad it would be without the Targinact!).

On the plus side there is the 3mg patch to go to too, (although I have heard reports of ones taking 8mg - would hate to think what it could be doing to you!!).

Take care.

beady3 profile image
beady3

Thank you for your help on the patch redness I did try sudocrem last night not to bad at least the patch works good

Foz_83 profile image
Foz_83

What is this RLS patch you speak of?

beady3 profile image
beady3 in reply toFoz_83

Well Foz it's a patch for rls called Neupro it's a Dophamine ,what county do you live

KAYEx22parker profile image
KAYEx22parker

After withdrawing from Pramipexile (Sifrol) after using it for 7 years I'm about to restart it because my GP & I dont know of any other alternatives rather than opiates. Is Rotigatine a Dopamine also, does the patch work better than taking a pill? I'm in Australia. I didn't want to return to dopamine but I don't feel I have a choice.

beady3 profile image
beady3

Kaye,that's how I was I came of Requip and said no more dopamine ,Rotigotine is dopamine I am getting on with it very well I don't know about a pill only had the patch ,start low don't go to high because that when the probs start. Good luck

in reply tobeady3

I was the same coming off Mirapexin - after a worsening of the symptoms I swore never again, (especially after tolerating horrendous side-effects) but good advice here put me in the direction of the Neupro patch.

beady3 profile image
beady3 in reply to

Raffs what do you think of this idea,I have got to speak to the doc on Wed do you think if I ask for 1mg patch I could take one and then maybe 2mg another night ,I have just had 5good night but feel rough light headed ,wanted to go to see daughter this week but not able to drive all that way 3hrs I feel in a right mess not knowing what to do as the doc doesn't know either,X

in reply tobeady3

Worth a try imo, equally you can cut a 2mg patch in half say nothing.

OR say nothing to the Dr until you have a better understanding then go to him, 'think' that based on your knowledge of yourself that your idea would work. Then, when you report back to him of your success, he feels you have a good knowledge of yourself and is more open to suggestion.

Jebus but I have gotten awful sly when dealing with Drs :(

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