I have been suffering for thirty five years. Initially, it was only when I was in bed and my then GP prescribed a drug which was effective for about twenty years before augmentation made it less effective, which also coincided with there being concerns about its possible side effects on the heart valves.
There followed a very brief interval on amitriptyline, terrible and clonizepan( excuse spelling) which was no better.
I have since even referred to an eminent London neurologist, who has made a number of recommendations to my GP. The first of which is:
Three doses daily of garbatentin, increasing to 2700 mgs, if necessary plus 4x 1mg ropinirole before bedtime. For six wonderful weeks the condition improved but it was short lived. Now the torment has returned, particularly early evening or any time in the day when I might have to sit for any length of time. On a more positive note, the ropinirole does seem to ensure I have a few hours of sleep.
The next recommendation was pregabalin, which I have yet to try. I remain hopeful but would welcome anyone's experience of this drug.
I earlier described RLS as torment, and if it were not for a supportive husband, I would despair.