RLS in foot: Am I the only one who... - Restless Legs Syn...

Restless Legs Syndrome

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RLS in foot

Pippins2
Pippins2

Am I the only one who gets the RLS sensations in their feet? I have it now alongside my legs and one arm but it's my left foot that is driving me crazy! x

19 Replies

Hi pippins2 no but I've been getting nice warm feet as though they're sitting on a hot water bottle ,only hope it stays like that and no worse

Redhots7
Redhots7 in reply to Mopsy1950

My feet use to feel like they were so hot especially at night. Bottom of feet at times looked really red and toe nails had a bluish tint at times. Saw doc and now on pills for High Chlorestrol. (ARG).

My point is: could be poor circulation. Should mention to your doc.

Mopsy1950
Mopsy1950 in reply to Redhots7

If I ever get to see a Doctor ,had to make my app 3 weeks ago as I wanted a skin check to ,app for 15 March ,they rang and left a message in effect ,we are short of Doctors will have to go elsewhere for skin check ,and a nurse can see you for other things on the 22 March ,so I'd be lucky to be able to discuss anything hope your wrong but any things possible lately sorry bit grumpy lack of sleep and just had a tooth out

Redhots7
Redhots7 in reply to Mopsy1950

They have to do blood test and really need to go in fasting in order for test for Chlorestrol . Do you have any other circulation problems ????

Mopsy1950
Mopsy1950 in reply to Redhots7

Not that I'm aware of only feet

Morning Pips, haven't heard from you in awhile. I did send you a private message on this site. I get RLS in both feet and legs, it makes you feel like dancing. Both arms and hands, this makes you feel wired, all you want to do is shake them, every nerve ending is wired, life can be very, very challenging. Anyway any news on the op, and how is the lovely granddaughter ? Big hugs Jimeka xx

Pippins2
Pippins2 in reply to jimeka

Hi Jimeka my op will hopefully be middle of April so in around 5 weeks, not got the exact date yet . Baby is naturally simply perfect of course lol.Alex has taken to it all like a duck to water and no ramping up of her RLS. I hope you are all well? Hugs Pipps x

You are not alone! My left heel is painful but not when I walk on it. It was painful in bed when I woke about 5.00 but it is ok now!

Hi, no you are not on your own, I have had RLS in both legs and feet for many years. Bad thing is over the last few years the feeling has changed to excruciating pain, even in my toes and up my left shin, also have it in my arms. Am taking Gabapentin at the moment, this helps some but leaves me very groggy in the mornings. Was on Ropinerole but put masses of weight on although pain from RLS went away like magic on it. Couldn't cope with the weight though. Still not lost all of the weight even after 18 months off it, but am getting there. RLS is a disgusting condition, disrupts all my days from disturbed sleep and horrid pain.. Absolutely no pain or restlessness during the day.

Hope you find something that helps you.

Hidden
Hidden

You aren't alone. It is worse in my feet than my legs. I also get it in my arms.

Pippins 2,

You are not alone. It is 6 AM and I have been awake for hours with sensations that run from hands, arms legs, and feet. Sometimes it feels like my feet are on fire and I get a sensation that makes me jump and move everywhere including my feet.

It doesn't make it any better that there are others who suffer the same as you, but I do. You are not alone!

Thanks for your replies. I find when it goes into my feet it somehow worse.Well I should say foot as it's only my left foot. The legs bad as they can be at times don't evoke the same panic that my foot does..It is by no means pain just the constantly having to move the damn thing .It helps if I push my foot against a wall or press down onto the floor but of course you can't sleep whilst performing this silly ritual !! Anyway thankfully my flares are only occasional thanks to my meds. I know that I am ready for my break from the Neupro patch, I have a break from it every 4 months or so and it is due.I have to pick a convenient time to do the Dopamine Agonists break so I tend to do it when it's school holidays (my stepdaughter is a Nursery teacher so she gets the school holidays too) so I don't need to drive for the school run. I up my painkillers to help with the withdrawals .I aim for a month break from the Dopamine but usually only make 3 weeks before I cave in lol. Doing this 3x a year has enabled me to avoid augmentation and remain on the lowest dose of the patch (1mg) for nearly 4 years. There must have been something in the air last night as the groups were busy.

Oh well onwards and upwards, take care everyone. .Pipps x

Hidden
Hidden in reply to Pippins2

"It helps if I push my foot against a wall or press down onto the floor but of course you can't sleep whilst performing this silly ritual !!" Now I don't have the pain most of you have, but sometimes over the years, I have moved to the couch at night where I can push against the arm of the couch with whichever foot is acting up. And I remember years ago when I was little Dad had installed a board at the foot of their bed for Mom to push against.

Pippins2
Pippins2 in reply to Hidden

I do the same thing with the couch! X

I get it in my feet quite often. Sometimes one and sometimes both. Usually on the soles.

I get it in my feet and hands arms and if I don't take my medicine has this happened to anyone? I will be having the sensations start at my shoulder go down my arms to my fingers and jump to my legs to my feet and in about 10 seconds start again. I just get up and walk I cannot stand that it feels so weird I don't understand how it does that

Pippens2 - mine is primarily in my right leg...and in the same area. Sometimes I just want to scream... Have you tried Magnesium Oil?

Pippins2
Pippins2 in reply to 3420

Hi 3420 yes unfortunately the oil does not help me at all  x

3420
3420 in reply to Pippins2

Wow....I've been given almost everything and my body did not react very well at all and/or I couldn't function, drive, etc. I decided to go back to cannabis and I'm sleeping so much better. Occasionally, I use Gabapentin during the day if necessary and then I double the dose from 300mg to 600mg. Like right now, my right leg is jumping. 

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