Sleep

[beady3]

Hi folks anyone walking the floor,why is it things are going ok then for what seems no reason at all the legs start they are very painful so I think the best thing is to get up ,I am going out tomorrow now I am dreading it because I will be so tired ha ho

[glosman]

Hi, know how you feel I have had RLS seems forever & its very difficult to understand why RLS kicks in without any notice. My own theory is that RLS just doesn't like sleep, its like a naughty child not wanting to go to bed - doesn't help at all tho.

You must go out even if you don't feel like it now, you will feel better when you are out + happy at not letting your RLS/tiredness beat you.

Hope you have a nice time.

[beady3 in reply to glosman]

Thanks glosman ,I did go into town and had a nice time I treated myself yet again,what med are you on ? And does it work most of the time, this site is good don't you think x

[glosman in reply to beady3]

Really glad you had a good evening.

I am on Ropinerole after having tried loads of other things, am finding that this generally works for me provided I remember to take it about 1 hour before bedtime, I then can get 5/6 hours sleep although its often not deep sleep its better than nothing. What about you??

[beady3 in reply to glosman]

I have had rls for 36 years so you can imagine what meds I have had ,most of them work for a bit then it's back again,since last Sep I have been on a Tramodol and Pregablin and norm they work bril hope it may continue

[glosman in reply to beady3]

I'm 55, can't remember a time when my legs didn't play up but thankfully Ropinerole is working for now I am in Spain which helps as I find that cold just makes things worst. Sad to say I still have to wrap my legs up warm tho' even here!!!

[Sue777]

Hi Beady,

It's awful isn't it. Awake most of the night and then in a deep sleep when it's time to get up.. Hope you have a good night tonight. X

[beady3 in reply to Sue777]

Thanks Sue I hope I do to ,are you ok x

[Rene]

Hi, this is my first message on this site and I wonder if it's possible to pinpoint a single reason why we have this problem. I get the burning sensation from my toes right up to my arm pits when I am in bed so I don't sleep either. I have just found out that I have sugar in my urine. Has anyone else got this?. Also I get pains in my knees which seems to get worse in the mornings and which just lately is in my arms. Wouldn't it be wonderful if we could find a common reason that we have this nightmare problem.

[Hidden]

Rene there are two types of RLS, Primary RLS and Secondary RLS. Primary means its genetic, passed down from a parent. Secondary means you have an underlying condition which is giving you RLS. Burning sensations usually means nerve damage. Have you been diagnosed by your doctor with RLS..? Just asking.