Help with Non Med Treatments - Restless Legs Syn...

Restless Legs Syndrome
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Help with Non Med Treatments

Hi everyone, As I have problems with tablets have been on Rotigatne for a couple of years but am getting augmentation. Magnesium spray has helped for a while but I fear this will soon become ineffective.

Has anyone got any tips for non med help and does anyone know when we might be able to get the rexaxis pad in the UK?

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DineS---Augmentation is a real problem encountered with most meds. if a large does is taken over a long period. This is what my Neurologist said about it. No mater what the med. you are taking, if they make a time release version you can take, so that a little of it is being put into your system all the time and no big dump at a time, then augmentation is more rare. Sadly there is no actual treatment for RLS. Every person is treated on anhok basis using their doctor's experience and ''off label'' meds. Off label means that doctors can prescribe a med. componded for one problem,for another if his observation or another doctors observation says it helped a patient. I hope you find a knowledgable

physician, who gives you a better course of treatment, in the future.

Windwalker

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Thanks Windwalker. Do you know anything about the rexaxis pad?

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Disnes, No I am not familiar with that. I have such an allergy to adhesives, that patches and pads are not possible for me. Good luck.

Windwalker

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Augmentation only happens when you take the dopamine meds and rarely for Tramadol. Not ALL meds cause augmentation. Only the ones i have mentioned. Disnes, i am sorry the Neupro Patch has stopped working and you are having augmentation from it. There are other treatments for RLS which can and do work for most of us. Can you explain what problem you have with tablets..? Most non med remedies dont work unless you have mild RLS. There is a topic on the right hand side of this page which gives non med treatments so you could TRY them. I dont know when the relaxis pad will be available for use in the UK. I dont think anyone is using it yet in the USA, as its prescription only and they are working on getting that done, as their insurances are having trouble in allowing it due to it being very expensive. So, when we will get it here i havent heard anything in concrete yet.

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Thank you Elisse for your reply. I am still just managing to keep the worst of the rls at bay with the patches plus magnesium spray but am certainly not free from it and am getting diarreah from the magnesium. I seem to get trouble from any drug which has side effects on the digestive system (I develop a raw feeling through my digestive tract ) Would like to think there was a non med treatment that would work but guess that's wishful thinking!

DisneS

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Hi DisneS. I am cutting down on Maxitram (sr tramadol) 50mg caps because of augmentation. I'm down to about 25-30mg atm. I find drinking abt 1/2 ltr tonic water helps. I also experiment with iron supplement taken with vit C. I tried magnesium tablets and also the spray. I didn't notice much help and I found the spray quite sticky. I have tried Cleo compression boots. No help whatsoever. Heat pads and hot water bottles help stop me taking meds too early. Also tried electric massager and Cleo pads. Only good while massage continues. I now have arthritis in my toe joints and ankles. Going to look at my diet and use pain relief gels for now rather than more pain meds. Hope you find something to help.

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Thanks AnnaVic I am taking iron at the moment but will take vit c as well if it helps the iron to absorb.

disneS

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I have had rls for nearly 50 years since my first pregnancy and am now nearly 70. I have been on Ropinerole for 12 years, now taking 4 mg. a day and have been experiencing augmentation. I was advised to take magnesium and took 150 mg per day with no effect for about 3 months. Since doubling that dose to 300mg I have had a wonderful relief. It doesn't give me any digestive problems luckily as I also have IBS. If any breakthrough I use a magnesium spray which works fast so am really happy. I now wish to start reducing the Ropinerole but am very nervous as I'm sure I will get withdrawal symptoms even cutting down by one a day. I just wanted to share my good news and hope others can try to see if it helps them. We are all different and have different responses to treatments.

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Hi Ruthmary so pleased about your news,why don't you come of Ropinerole and start another tab at at lower dose ,have you tryed Tramodol,I have had so many tabs now on Tramodol and getting on well they are just pain killers ,I have a bath each night with magnesium salts and I think that helps I will buy mag spray today and try that,I am 79 and I have had rls for 48yrs it gets worse but at the min things not to bad let us know what you do x

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have you tried hot water bottles. Also cut out alchohol and caffeine or anything that stimulates the nervous system. This is the best I can do.

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have you tried compressions tockings.

As a NON MED choice, it is something to try.

works for me and a lot of people who actually try it.

If you have the creepy crawly type of RLS which just want to move the compresion seems to satisfy the urge to move! the feeling is still there but you don't have to move and can sleep. Usually works for me except when the feeling goes way up into the groin area. I have experimented with a tight girdle then, it helps.

Yes, I am a male, and will do whatever is needed.

Please, give the compression stockings a try. It is a NON MED choice, and report back here how it went.

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My ARLS started in my early twenties, my attitude towards medications was pretty fixed...I need my liver and my kidneys for the rest of my life I refuse to take medications (although years later out of desperation I did take a low dose tranquilizer for awhile....reason being: no sleep/no healing.) I also take a low dose melatonin. I am not knocking people who take meds because I do not walk in their shoes, however, I did manage to cure myself of chronic fatigue and the rls naturally because I finally clued in what it was for me. Please go to my site (as it is too much to post in a forum) I am certain you will find at least some answers there for you. After you read through it if you have any questions please don't hesitate to ask! ( website deleted as contravenes forum rules - Kaarina - volunteer)

Cheers,

Kelene

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