Tramodol

[beady3]

thank you all for helping, I am going to take an extra tab tonight and hope that works,the doc only tells me every one is different and he doesn't realy know good night to ALL x

[Pippins2]

Hi Beady,hope it works for you taking an extra pill and you get a good night x

[blokie]

Hi Beady, I'm on Pramipxole 35 mg they are very good and haven't had a bad night for ages. I take one mid afternoon and another at 9 at night and they don't make you feel sleepy.

Have a good weekend...Blokie xx.

[beady3 in reply to blokie]

Nice to see your name ,I have been on those tabs then the day comes you start taking more and more then try something else. I will keep on with the Tramodol one has to live in hope. Xx

[funnyfennel in reply to blokie]

Hi blokie, I also take pramipexole...x2 spaced out in the evening and along with 1 oxycodone and 1 paracetamol the RLS is mostly ok...but still dont sleep much so am allowed 10 tamazepam occasionally.

Your dose of prammie seems very high, do you get side effects ?? I felt v.strange on x3 so cut back by using the oxy.

[blokie in reply to funnyfennel]

Doc says it's ok review in 2 weeks have no side effects.

[pjmccoy1]

Beady how is the tramodol any better? Do you take immediate release or extended?

[beady3]

Thanks for asking pjmccoy1 ,yes thing are going very good I take the slow release Tramodol ,I am getting a good nights sleep, I would sooner take this sort of tab than dopamine sort. What are you taking and how's it going xx

[Pippins2 in reply to beady3]

Hi Beady, good to know your Tramadol is working for you again, we sometimes just get a blip where legs flare up , then meds start working again, I am doing much better now back on Neupro patch, still get the allergy to the adhesive but not as bad now I put them on my stomach, I use a bit of steroid cream as soon as I take it off and some cream gor the itching, Rather mess about like that than be up all night, Take care lv Pipps x

[pjmccoy1 in reply to beady3]

I've been thru most all of the Rx's since 2003. Started with Neurotin and Clonzepam. Then tried 1 tab of Mirapex and passed out. Switched to now known "no no" Carbidopa/Levadopa which managed for about 7 years and major augmentation started. Horizant was added to Carbidopa/Levadopa and Clonazepam. Then stopped Carb/Leva on my own and was just on Horizant. Neupro Patch drove me wild for 3 days couldn't take it any longer, Gabapentin made me nauseous and Horizant was really working but stayed on it another 11 months at which time the internationally known Dr. Arthur Walters RLS guru, upped my clonazepam to 1mg at night and stayed on Horizant. That cause depression apparently. So off Horizant. I've been suffering with RLS untreated from 2013 - 2014 at which time ended up giving in to trying the ugly scary Methadone. First trial got so dizzy, vertigo sick for 2 days. Halved dose to 2.5mg and still nausea but it sure works for the RLS. Ended up stopping after 4 days and have had a hole lot of health issues, including refractory major depression with limited RLS friendly med's you can use. Anyhow, started liquid methadone at 2mg and had horrible GI pain so reduced to 1.5mg and it worked pretty well for about 6 weeks and at 12 hour mark RLS started flaring up. Refused to increase dose. Then Bupropion was added for depression and that had RLS under control at about 85%. Then had to come off methadone because of sicca symptoms thinking it might be an auto-immune so wanted to Rheumatologist wanted to see if was med's related since symptoms started 6 weeks after starting methadone. Have been off liquid methadone for 2.5 weeks and RLS giving me fits. Chose to go back on Horizant last 5 days and it helped the painful thighs and RLS symptoms during day and most of night and gave me a little sleep (also developed extreme insomnia last 18 months that NO ONE can seem to treat). So I saw you were on the Tramadol but had experienced some augmentation (which it is the only opiate that can cause augmentation). So did you build up tolerance that quickly or did you have earlier and increased symptoms? I am on bupropion and so there is a seizure risk (minimal) with it, as well as, Tramadol so I'm thinking doc's won't allow me to combine the two and I must be on an anti-depressant even though it's not really helping much.

[Hidden in reply to pjmccoy1]

Yea me too Snap Now I'm on Loranzapam and Licra

[beady3]

Like us all you have been through the mill but they havnt sorted you out yet have they,my augmentation was when I was on Pramopixal and hope I never have again Been on Tramodol since September and it realy is helping nothing to moan about at all,first went on instant tabs but they made me feel sick and very sleepy,I changed to slow release 100mg a day and it's been brill,I can only tell you how I get on. Please don't stop sorting yourself out ,I would say rls is enough to make anyone depressed. Good luck x

[pjmccoy1]

Ms. Beady if I may ask how long have you had RLS?

[Hidden in reply to pjmccoy1]

Her name is Pippins

[Pippins2 in reply to Hidden]

Erona I do not understand why you have written this comment.Why have you put that? What do you mean by her name is Pippins?

[beady3 in reply to pjmccoy1]

Pjmccoy I have had rls for 45 yrs , I am 79this year x

[Hidden]

Yes, some people get so knocked out by taking tramadol or any narcotic that it trumps the rls. and most of us need a little more help because we can't pass that point of having our legs annoy us enough (like getting knocked out from narcotics) so we are dog tired from the narcotics but still can't be still with the legs. Our bodies are screaming for fresh usable iron so we take it and some are lucky that it gets distributed all over the body.. . Most need a little help to carry useable iron and dopamine pills are the fastest carriers of iron...

So imagine a little race car made of dopamine burning rubber through our arteries and little specks of iron rich blood coming out that exhaust... ( Well that's how I picture it anyway)

I believe that's how it works... so

Try iron and see if the fresh usable iron can move through the body without a vehicle ( the dopamine) IF it can't , there is the dopamine car already gassed up with fresh iron...

If that's not going to work then try a narcotic to overpass the leg movement - sleep will trump the legs that want to move around...

I cannot think of a more simple way to explain that so even a little kid can understand...

I may be way off base here but at least then everyone can understand WHY dopamine is needed and how it works.... right??? They also understand better how a narcotic might work. You can even take that a step further and tell them that taking Benedryl is like putting the wrong kind of gas in the car...