Hello all, dont know if this has been discussed before, apologies if it has. Does any one know of the new massage/ vibrate mat designed for R.L.S I know it is only available in America at the moment through prescription. Kim x
Relaxis: Hello all, dont know if this... - Restless Legs Syn...
Relaxis
Hi is that the one you put your feet on then turn machine on to like a vibrating and pulses go up your legs. If so I bought one from Argos £100.00 they sometimes are on offer. The answer is it made my legs worse they did have it back x
This is the info for that relaxis pad. It has been discussed before, but new members may not know about it. You need to read all the info on it. Its only for Primary RLS not for Secondary RLS is the first thing you need to know.
What's the difference between primary and secondary RLS? Are you talking about a stage of RLS or RLS as being caused by another primary disorder such as TBI? Any websites/references you could share?
This info gives what is Primary and Secondary RLS.
From what I understand Primary seems to possibly have a genetic cause and can run in families whereas secondary seems to have an "outside" cause. I'm sure someone else on here can explain it better !!
I had secondary RLS, it started within 1 day of being given a heart drug called Digoxin. I had unrelenting 24/7 RLS, I thought I was going to go insane from the constant pacing around and severe sleep deprivation.
Eventually I was changed to a different heart drug (Bisoprolol) and within 1 week all symptoms were gone.
I have had it occasionally since although very mildly and it's always followed being prescribed certain new medications.
Thank you Elise and booklover. I think mine is primary. Though it was very mild until some numbnuts decided for no reason to schedule a sleep study, I wiggled my toes a few times (very conscious as part of stretching) and another doc (not) my primary decided to put me on parampexole (sp). Told them I didn't think this was a good drug for me as I have some OCD tendencies. They insisted, I reluctantly agreed, then all hell broke loose. Mood swings, overeating, and after several months I quit taking the stuff. THATS when my RLS went into overdrive and I now have to take Klonipin and still have sleepless nights and look for other treatments. I'll get off my soapbox. I just think a lot of problems are actually caused by or worsened by big pharma.
Can I get hold of one in the u.k?? 🙏🏼
I find that that quite often RLS comes on in response to a "trigger". For example, if you dig your fingernail into your leg, or you step on something sharp. So, I have steered well clear of devices that might show this trigger, such as vibrating thingys or Tens machines etc.
My sleep doctor gave me a prescription for the relaxes, but insurance will not pay for it, so my cost would be $750.00. I did find out that you must be a back sleeper to use it so I never ordered mine, since I have so many back issues and I sleep on my side, that is if I ever can get comfortable enough to sleep. My RLS is severe and I have been on every medicine that has been mentioned on this site. The only way I get any sleep is a combination of pills that consist of a sleeping pill, an anxiety pill and pils that treat Parkinson's disease. I have just about given up on getting any relief for my RLS.
Hi, I havent tried a vibrate/massage mat but pneumatic leg and foot boot made by Cleo Active on offer at £55. It works much like a blood pressure cuff. I found it useless for RLS though it is relaxing to use before symptoms kick in. Could I ask if anyone has used quinine 300mg for RLS. I have just been prescribed it and find it gives me severe back of the head headache and some nausea. I had previously taken tramadol for cracked ribs and when I stopped RLS was very distressing. I started taking 1 50mg prolonged release tab at 4.00 before pains got too severe and that solved problem for short time. I found I would have needed to increase dosage as I began to get agitated and flu like symptoms before tab was due and didn't like the idea of a tablet having such an effect on my well being. After some awful nights I think I am going to contact GP and take an increased dose to get me through Christmas and a wedding in new year. I will then look for alternatives. Sorry for such a long first post.
Thank you Anna, its good to know about the different products that are out there x
AnnaVic, I havent a clue why your doctor would prescribe quinine for RLS. Firstly quinine doesnt work for RLS, its used for cramp. Secondly quinine causes health issues, it can cause heart problems. The FDA in the States have given it a strong warning for not to be used for cramps, and quinine should only be used for malaria. I would definately look into changing the Tramadol for something else if its causing those feelings for you. Or at least discuss it with your doctor.
Elise's, Thank you for reply. I had read on internet that quinine wasn't to be prescribed for RLS and had been withdrawn for leg cramps. I intend to try to get one of the GPs to ring me tomorrow, appointments take 10 days or more. Did stretches and used hand held massager to try to get some sleep. Have now taken ibuprofen and rubbed Boots ibuprofen gel on legs - it seems to have taken horrible feeling away. Hurrah. May not last long. Will keep you informed.
Hi AnnaVic
I too bought the Cleo Active Leg pads, on the assumption it was a leg massager but in actual fact is nothing more than a blood pressure cuff!! Useless!! I have still to find any medication that doesn't make me feel nauseous so tend to try and cope (not usually very well) without medication....
How about one of those anti-sickness tablets, for example, Domperidone.
Hi
I have just returned to the site - can you tell me that this Relaxis pad is worthless and is it the same as prescribed in USA?
Someone said it was for primary RLS but why does it not treat secondary?
I have severe RLS and will try anything.
Hope you can help
Gloroy