Obviously the doctors will be aware of the medications I am taking, but I wondered if anyone has had personal experience of an identical situation? Should I try to stick to my dosage as closely as possible?
On the other hand does anyone think there is a remote hope that with all the trauma to the system I might be able to completely stop taking it, as the condition is with me almost 24hours, and the medication, which I take in the evening, can now only offer slight relief.
I would be interested to hear any thoughts please. Many thanks for your trouble!
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madfol
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Hi madfol, I dread ever needing to go intk hospital because of rls.I know from your previous posts of yours you are experiencing augmentation from the med you take which causes your legs to be bad most of the time, I cant imagine they would just disappear because you have an op.Hopefuly you will get strong pain killers agter the op which should keep symptoms at bay, You need to talk this over with your consultant, make sure its in your notes, and no one tries to give you anti sickness meds that will make your legs go nuts! Tell every medic you meet, make sure in bih letters on your file, good luck x
Hi I have done a bit of delving and another member who has had mamy surgeries says Zofran is a anti sickness drug which can be used after surgery and will not make your rls worse.
I didn't know anything about he 'sickness problem' but will watch out for it. My concern is that if I'm not able to take the Prami. I will be in a dreadful state, as presumably I will need to spend at least a couple of days in bed. Oh well, I expect I'll find out without a doubt! Thanks anyway!
Tell them you must take the meds at a certain time and explain how bad you will be if you dont.! You need to see your doc and ask about changing meds as it sounds like you now have augmentation due to the pramipexole .
Hi Madfol, I have secondary RLS and leading up to my cardiac surgery (repaired valve and some great vessel replumbing), it was absolutely awful. I was on so many heart meds even Tramadol wasn't working (I was taking it more for chest pain than RLS anyway) and I was maybe sleeping 45min/night. Don't worry about moving post op - the physio had me up in a chair the day after the op and ever day after and legs were fine. Depending on your underlying health issues, you'll be encouraged to move a lot - especially during rehab - and I found my RLS went away shortly after surgery. For primary RLS sufferers, make sure to tell docs that you're on RLS meds (that may be titred), and that recovery will be hindered without them. I found many sympathetic ears among staff (I'm a nurse as well), and many sufferers of RLS in the ward. Best of luck! Xx
Many thanks for this...sounds encouraging. Do I understand you to say that the RLS went away completely after the op? I think I'm wishing too much, but did it improve at all, and were you able to cut down your Prami. dosgage in the end?
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Am planning to get off .625 nightly pramipexole. Have been increasing slowly over the last 7-10 years and need to stop.
New on here, i am actually the wife of the RLS sufferer. He is not a big computer person so I am sharing what I read and learn with him. 
.I am looking for clarification on a number of things to do with RLS and if it's possible to get answers I would be over the moon!!
I am on gabapentin for 3 weeks at 600 mg am and 600mg pm I have side effect and want to go back to pramipexole 
The medication I take has a side effect of weight gain. I have gained 20 lbs and am very uncomfortable with that. 
