Restless Legs Syndrome
10,161 members6,284 posts

At last I'll have the spinal morphine pump!

After I have been fighting and struggling for exactly 2 years, the doctor at the pain clinic in my hospital finally is going to give me a spinal morphine pump for my terrible RLS/WED-pain in legs and arms 24/7!

The operation day is decided to be the 22nd of october.

Now I "only" have to set the Fentanyl adhesive, the Sifrol and the morphine Depolan out, so that I am clean from medicines the 22nd.

I guess I'll have a couple of hours/nights in hell while doing that and do really hope that the pump will work for me.

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I think this operation is still experimental in the world of RLS. I just read an article in Night Walker's Magazine from a patient who had this operation and after 36 months he still has not had RLS symptoms, just a little restlessness in the evening.

You will have a very hard time to get off all meds and I hope that the operation goes well and gives you a much better quality of life fo a long time.

Corrie

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I'm wishing you the very best of luck and hope that the procedure goes well for you

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Pineapple, I would "like" this statement if we had a "like" button

so we didn't always have to comment so much.. I agree, my

sentiments exactly.

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best of luck with it, i do hope it works for you, keep us informed of your progress x

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Hi I've not heard about this proceeds your having it sounds great and I wish you all the luck in the world. I know what it's like to wait for a spinal proceder my heart is with you. Missymaz.

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Thanks all!

I know that it doesn't work for everyone, but IF it works for me it will be heavenly!

I've spoken to people who have had their pumps för 14, 7, 5 and 3 years, all working out perfect and with the same very low morphine dose and no side effects!

There was some scientist in the north of Sweden who did a research on this year 2007 with very good redults.

And I am in that situation that I do not have ANY alternative at all, the oral drugs are not working optimal because of terrible side effects on the one hand and my ileo ostomy on the other hand.

So I am happy and looking forward this with big enthusiasm.

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Good luck Swedish, i hope it works for you..!! Look forward from you of the results...

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Good Luck

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You know that I was kidding about pushing you out of the boat..haha

Right Rahim?

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Just want to add my good wishes. Hope all goes well. How hard we all have to fight to live with this awful condition.

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Oh I am so interested in this procedure I have also discussed this pump with my doctor, I have done all the reading and pros and cons on it, but my problem is finding a dr in Ontario Canada , I also have severe RLS 24/7 . You have the same fear as me running my meds out to go onto another devise I don't know how I would do it would be a day of hell that's for sure, I can't wait to hear how you do thru this please keep me posted.

Have a good day !

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