At last I'll have the spinal morphine... - Restless Legs Syn...

Restless Legs Syndrome

22,315 members16,370 posts

At last I'll have the spinal morphine pump!

11 Replies

After I have been fighting and struggling for exactly 2 years, the doctor at the pain clinic in my hospital finally is going to give me a spinal morphine pump for my terrible RLS/WED-pain in legs and arms 24/7!

The operation day is decided to be the 22nd of october.

Now I "only" have to set the Fentanyl adhesive, the Sifrol and the morphine Depolan out, so that I am clean from medicines the 22nd.

I guess I'll have a couple of hours/nights in hell while doing that and do really hope that the pump will work for me.

Read more about...
11 Replies
dekker profile image
dekker

I think this operation is still experimental in the world of RLS. I just read an article in Night Walker's Magazine from a patient who had this operation and after 36 months he still has not had RLS symptoms, just a little restlessness in the evening.

You will have a very hard time to get off all meds and I hope that the operation goes well and gives you a much better quality of life fo a long time.

Corrie

pineapple_head profile image
pineapple_head

I'm wishing you the very best of luck and hope that the procedure goes well for you

in reply topineapple_head

Pineapple, I would "like" this statement if we had a "like" button

so we didn't always have to comment so much.. I agree, my

sentiments exactly.

best of luck with it, i do hope it works for you, keep us informed of your progress x

Missymaz profile image
Missymaz

Hi I've not heard about this proceeds your having it sounds great and I wish you all the luck in the world. I know what it's like to wait for a spinal proceder my heart is with you. Missymaz.

Thanks all!

I know that it doesn't work for everyone, but IF it works for me it will be heavenly!

I've spoken to people who have had their pumps för 14, 7, 5 and 3 years, all working out perfect and with the same very low morphine dose and no side effects!

There was some scientist in the north of Sweden who did a research on this year 2007 with very good redults.

And I am in that situation that I do not have ANY alternative at all, the oral drugs are not working optimal because of terrible side effects on the one hand and my ileo ostomy on the other hand.

So I am happy and looking forward this with big enthusiasm.

Good luck Swedish, i hope it works for you..!! Look forward from you of the results...

Good Luck

in reply to

You know that I was kidding about pushing you out of the boat..haha

Right Rahim?

Dollis profile image
Dollis

Just want to add my good wishes. Hope all goes well. How hard we all have to fight to live with this awful condition.

Shoeinthree profile image
Shoeinthree

Oh I am so interested in this procedure I have also discussed this pump with my doctor, I have done all the reading and pros and cons on it, but my problem is finding a dr in Ontario Canada , I also have severe RLS 24/7 . You have the same fear as me running my meds out to go onto another devise I don't know how I would do it would be a day of hell that's for sure, I can't wait to hear how you do thru this please keep me posted.

Have a good day !

Not what you're looking for?

You may also like...

Spinal morphine pump

I've now got the spinal morphine pump for my severe RLS\\WED. It is loaded with a very low dose of...

Morphine

My doctor started me back on Morphine Extended Release 15 mg TID. I am quitting Norco 7.5/325 to...
BBGuess45 profile image

Relief at last

I had restless legs for about 18 months and to my ultimate joy it has stopped. I tried to find out...
reliefatlast profile image

Answers at long last

Last week i went to see a neurological 'expert' for the first time since diagnosis in 2005. Even...
Avosyl profile image

The best RLS solution used for the last 300 years

If you search in the NIH or Johns Hopkins Hospital web sites, you can see information about RLS....
davidadill profile image

Moderation team

Kaarina profile image
KaarinaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.