Just goes to show, that whatever we think might help regarding vitamin taking changing diet etc etc, it doesnt work for most of us. Sorry that all your effort hasnt helped with your RLS. But at least you gave it a good go.
Hi Yikes. Please don't give up. You are not the type too. My RLS is only just settling after a very bad period when I was away. I don't like it that I am totally dependant on a medication package. I massage my feet and legs, shower them, and do all sorts to try and calm them down. I eat healthiliy and yet all of us probably get to this low point. I know I have. My feet are bubbling away despite taking all of my medication. We just seem to get periods when they just seem to flare up. Try the massage and the shower or hot and cold compress and let us know how you get on. I hope that you see an improvement soon. Best Wishes
Oh yikes...I am so.sorry you are feeling this way. But I know exactly how you feel. It's so horrible when you try everything you can think of and nothing works. I have spent so many days slobbing around , doing nothing , achieving nothing in my day and feeling bad, that I wonder of its worth it. It just feels like a waste of life! But honey keep going , one day something might help. There must be a reason for all this...if only for us to learn compassion for others with these weird stupid illnesses. Share with us and we can All keep each others going.....sending you love across the miles x x x
Dear Yikes, I recognise your struggling with this horrible RLS, especially when you have tried everything and nothing seems to help. I hope you're feeling better very soon, I wish you all the best trying and that the people surrounding you have a bit understanding!!
I'm sure you've tried it but a hot bath works for some people. By hot I mean as hot as your can stand it, adding more hot water when you're in it. It seems to have them same effect as a cold flannel on your forehead when you have a headache. Hope this helps. Be strong.
I know exactly how you feel nothing seems to help and you just cannot get rest because your legs and arms muscle spasm and won't let you sleep. Worst thing that has ever happened to me.
My legs are under control now, thanks to pramipexole, but I do remember the misery of trying to get through the days after half an hour's sleep.
What helped me a bit was a large coke bottle filled with cold water, at the bottom of the bed, to keep my feet cold. I took my cold water bottle every where I went, including hospital. The nurses thought I was crazy. And when they found out I walked round half the night they were sure I was crazy!
I know how you feel - I guess we all do. When nothing works you feel beyond desperate. A very warm bath helps a bit for me, but then in bed I don't want heat. I splashed out on a chillow, but couldn't keep still enough on it and it just got in the way. The 'natural route' or vitamins stuff didn't work for me either, but don't give up. We have to believe that a cure is imminent. Carry on slobbing out, we have to get through in whichever way we feel. Take care, yikes x
Have you tried quinine.....I am in the US again now & can get 'Leg Cramp' tabs...they are WONDERFUL.......I can send you a lil' bottle if you want to try them out ?!
I was driven up the wall till I found these in the US, my poor Father walked the floors in the UK for years in the 50's 60's & 70's...I WISH I could have tried these out on him !
I really feel terrible for you. Here in Canada they are finally really appreciating that RLS is a very real thing and terrible to live with. Personally I haven't found that anything herbs
or yoga or acupuncture work. I have tried all the non medical treatments and they did nothing.
Here the most Common medical treatments are either Pramapexole or its generic mirapex, requip or Sinnemet. I have used them all and they all give me relief. Mirapex I found works the best but as I have mentioned there can be major side affects.
The fentanyl does work but it is not a great option bring it is a very strong narcotic but.....to be honest I would deal with any of the side affects rather than deal with my RLS. I get it I n my back and arms as well as my legs!
Hi Yikes, I ve just red your blog Bloody hell you sound in a bad place. I red u lately have managed some sleep "thats great news" and will take the edge off a little. I wonder if you have tried talking to your boss?take in some research, tell him what your doctor suggest, be honest how it makes you feel, as not everyone will be a judge. Maybe you need some time, reduce ur hours for a short while? as it sounds like u have tried every thing else??"when I am realy bad I do not lay down to sleep but sit up as if in a chair with your feet on the floor, after a while I do start to drop off to sleep with limited kicking of the legs". stretching and walking, massageing even sitting on my legs to reduce the blood flow where no help. I got to stage where the thought of goin to bed was a JOKE and u do feel like u r goin around the bend...I hope u can find some peace,I will pray for u. let us know how u get on and Im ere if you need to talk.
I'm going to the neurologist in 12 hours.
Tonight my legs are doing pretty good but I'm awake late
doing paperwork.
I am going to stop working for the time being. I gave my 2 week
notice that I am done. =) Financially, that might not be the best choice
but I am going to learn to cut corners and budget a little bit tighter.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.