Promises To Keep: NIH have made statements... - Ramsays Disease

Ramsays Disease

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Promises To Keep

Peter-J profile image
14 Replies

NIH have made statements now have promises to keep

cortjohnson.org/blog/2015/1...

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Peter-J profile image
Peter-J
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14 Replies
Cloudedout profile image
Cloudedout

”I have promises to keep And miles to go before I sleep”

For sleep deprived miles are endless and young lives have been taken because no end was seriously a prospect in from Siberia the fire will save some from freezing.

CheshireKatz profile image
CheshireKatz

Believe the public statements of intent will make finding a way with research funding simpler than UK where psychiatrists have taken funding from biomedical projects.

Psych lobby still fighting in comments on this report theatlantic.com/health/arch...

Seascape profile image
Seascape in reply toCheshireKatz

Followed story in the Atlantic on Tragic Neglect theatlantic.com/health/arch... from link Cheshirekatz

carch520 profile image
carch520

Better than nothing and I am jealous its more than we get.

Ian123 profile image
Ian123

Organisations of the size of the NIH take time over adjusting position.

A quote by Benjamin Franklin "Words show a mans wit his actions there meaning"

will be the standard for judging what has been reported.

Theresa60 profile image
Theresa60

Almost a definite maybe in course alteration from a billion dollar funding source.

Babylon5 profile image
Babylon5

The good news of having low funding a small increase is a significant made me smile.

Halflife profile image
Halflife

The "most powerful man in American science," Dr. Francis Collins, Director of the National Institutes of Health (NIH), was interviewed by Charlie Rose, Tuesday, November 3, 2015

At 15:55 of the interview, Dr. Collins talks about new research at the NIH on chronic fatigue syndrome (CFS):

Charlie Rose: I saw something, it may have been associated with the NIH, about chronic fatigue.

Francis Collins: Yes.

CR: Did you write something?

FC: Huh. [laughs] This just happened. So...

CR: That's what I thought.

FC: So, I've been puzzled and frustrated about how little we understand about this condition. Now just this… Here's a theme we've been talking about this whole time.

CR: I have chronic fatigue, what is it?

FC: Yeah. [laughs] But chronic fatigue syndrome, people who have that diagnosis, it's a very heterogenous collection of individuals, but the Institute of Medicine has just sort of defined what we should sort of limit it to is people who are profoundly affected by fatigue.

charlierose.com/watch/60643999

Effort profile image
Effort

Watched it all but fast forward onto 15min and more of the discussion had a chance of getting into my understanding.

Halflife profile image
Halflife

Moving CFS on

medicalnewstoday.com/articl...

Ian123 profile image
Ian123 in reply toHalflife

"Prof. Wessely, who pioneered CBT for CFS/ME patients, told MNT that while there is clear evidence for an underlying biological cause for the disease, as seen in neuroendocrine profiles, CBT can help patients to cope with the challenges they face"

Quite some about change from previous statements:

Professor Simon Wessely himself has stated that ME is a waste of money and ... perpetuated by errant illness beliefs and maladaptive coping”. .... from illogical thought processes, that our illness is idiopathic, psychosomatic

actionnow.co.uk/wp-content/...

Mistymooring profile image
Mistymooring

View the video clip metro.co.uk/2015/11/12/18-t...

Brokenparts profile image
Brokenparts in reply toMistymooring

Shows a families hurt a very powerful statement.

rebound profile image
rebound in reply toMistymooring

thanks

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