Research into CFS/M.E : Sleep study -London

[msBrightside]

www1.imperial.ac.uk/departm...

For anyone who might be interested in taking part in a sleep study based on sleep problems with M.E.

[Ian123]

Has recruiting problems discussed on this forum

forums.phoenixrising.me/ind...

[RockRose in reply to Ian123]

Very helpful as always, thanks Ian.

[RockRose]

Thanks so much msBrightside, I'm writing to them, seems valuable research.

[msBrightside in reply to RockRose]

You're welcome let me know how you get on

[RockRose in reply to msBrightside]

Sounds an excellent team and a great study; they've nearly finished recruiting and I was invited to join a reserve list, yet when I read the side-effects of the meds I felt it wouldn't be for me due to my hypersensitivity.

However, I thanked the team and other volunteers for their valuable research, as its great they're doing this.

Hope we'll hear an interesting outcome.

Cheers for now.

[msBrightside in reply to RockRose]

Thanks for letting me know how you got on.

It does sound great pity about the side effects, though it's good you spotted it and looked after yourself

Yes very valuable, I'm grateful they are doing such research.

Keep me updated if you find out the outcome thanks

[slowmotion]

Three weeks in hospital was where I wussed out there are no good hospital experiences that change my fear of been a Guinea pig.

[msBrightside in reply to slowmotion]

I'm with you on that

I've so far avoided hospital though I've been told of hospital programmes in the city. I may try that, I'm interested in helping to aid any research

I do understand your fear!

I suppose I haven't experienced it myself

[slowmotion in reply to msBrightside]

I am feeling bad if I put anyone off volunteering for research do what feels right for you people.

[msBrightside in reply to slowmotion]

Everyone is entitled to an opinion especially if you've already experienced it yourself don't feel bad

[budgiefriend]

Says you must have a current diagnosis of CFS. I think there are a lot of us who are self-diagnosed or have a Fibromyalgia diagnosis and doctors stopped with that, or suggested we 'might' have CFS, (myself). But if you have firm CFS diagnosis, then you have to wonder if they think it's only psychosomatic illness.

I hope they learn some things from this study, but it's only dealing with drugs for sleep. Maybe testing some new ones? If only testing old ones, I doubt many of us would be interested. We've all probably tried them.

[msBrightside in reply to budgiefriend]

I must be the opposite to you I am diagnosed with CFS and partially suggested diagnosis (almost self diagnosed) of Fibromyaliga.

I find their opinions not worth thinking about I'd just get cross

Any research is a good thing in my opinion I desperately wanted to do the study myself but I'm under 25

Just thought I'd share it for those that might be interested knew it wouldn't be for everyone.. though for people like me that have not been given any form of clinical hospital treatment there is hope in it

What was your experience of trials? - doesn't sound positive lol