UK CFS/M.E. Research Collaborative 2

[Ian123]

Second day sound quality poor in parts

youtube.com/watch?v=6sTXIgV...(Not working as expected?)

youtube.com/watch?v=deJHEul...(Not working as expected?)

youtube.com/watch?v=kYucfBY...(Not working as expected?)

[SophiaG]

I cannot sleep these will pass time.

[Dunnlyn]

Jo Nijs research medizin.uni-tuebingen.de/tr...

[Effort in reply to Dunnlyn]

Alarm bells a psychological response cannot be dismissed.

[budgiefriend in reply to Dunnlyn]

Final conclusion said that one thing which is needed is long term evaluation of patients who have exercise therapy. We all know why that is not a viable option. The risks are going to make it impossible except if they study people who have already undergone GET without being warned of the risks.

[Ian123 in reply to budgiefriend]

Kindlon T. Reporting of Harms Associated with Graded Exercise Therapy bmj.com/content/350/bmj.h22...

Mark Vanness used a scientific measure of function against the self reporting of PACE 2011 saying patients had a well founded aversion of exertion which would include GET.

researchgate.net/profile/Ma...

[CheshireKatz]

Researchers bringing skill from new areas is a new begining

[Peter-J]

Getting networked is smart.

[readerlist]

Attended associate member workshop enlightening posing greater questions within a generally accepted hypothesis relating to phenotypes.