We often think of being prepared as having our legal affairs in place. Here's something to also think about. I made a list of people and phone numbers who could step in for emergency situations with my PSP wife. It's a list of neighbors who are willing short term help and also church people for short term help. I'm the only caregiver at the moment so if something happens to me my PSP wife would need immediate help. Also on the list are personal care people I've found who don't come through an agency but are Certified Registered Nursing Assistants (they cost less and are as good). These people can come in nights and on a "more hours" basis. Also on the list are care facilities I've researched locally and found acceptable should my wife need to go into one and I'm not around. Your relatives and family won't be prepared for an emergency unless you prepare them. I also have forwarded this list to all those on the list so they know their helpful roll. It is also important that you document the capabilities of your PSP patient. What can they do safely? What can't they do safely? Can they speak and be understood? Can they go to the potty on their own? etc. etc.