Is there any actual medical test related i... - PSP Association

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Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms?

Dennis-Wburg profile image
8 Replies

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms? While I've seen these terms written in questions & answers on this web site, I don't know where to look to find more information.

Thanks, Dennis

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Dennis-Wburg profile image
Dennis-Wburg
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8 Replies
jillannf6 profile image
jillannf6

hi dennis

i think i ha ve the slow sort of PSP as i am still here standign uprigt most of the item snce dxd dec 2010

you will need ot ask your neuro and he mahy nto want to answer atall

it is a diffiuclt illnesss to plot - i htink i am sitll at stage

11 but really others are ina better position to tell

lol JIll

:-)

Dennis-Wburg profile image
Dennis-Wburg in reply tojillannf6

Jill, thanks. You are a real inspiration for others with PSP and their care givers Here in the U.S. I can't locate any information on fast or slow progression PSP. Actually, there seems to be more information and support groups in the U.K. Since you mentioned stage 11, how do you measure stages of PSP?

Keep your chin up. Dennis

concernedfamily profile image
concernedfamily

Hi Dennis

I am also at a loss to find out what stage / level my mum is at no one seems to want to commit to giving information. The only guidance I got really was from socila worker who said it progresses very fast! May be someone out there has the answers we need.

Dennis-Wburg profile image
Dennis-Wburg in reply toconcernedfamily

I understand that due to the limited medical research on PSP there is less information available. There also seems to be a big difference in how soon each symptom first appears and how fast they progress. Here in the U.S. I haven't been able to find any information on fast or slow progression. Actually, there seems to be more information and support groups in the U.K.

Dennis

concernedfamily profile image
concernedfamily in reply toDennis-Wburg

Hi Dennis

We do have the advantage of using this system and you can gain knowledge / advice from other people who have experienced the problems that we are likely to face. I find it very helpful and for my mum I am due to be contacted by a PSP nurse, so hopefully she will be able to shed more light on things. Will pass on anything relevant.

ileen profile image
ileen

Hello,

I live in the US (Maryland) and there is a curepsp.org website that has alot of info. Go to the site and research because I believe there is something on the different stages of PSP. Good Luck and God Bless to all.

Ileen

Dennis-Wburg profile image
Dennis-Wburg in reply toileen

Thanks for your reply. I am familiar with the curepsp web site but may have missed some of the information. I'll keep searching.

Dennis

jillannf6 profile image
jillannf6

hi all

i go thte idea of slwo PSP from an american on ahtis sit enad googled it

the phases are put otu by the Psp uk assoc but are a guidelien

happy weekend 2 you all

lol Jill

:-)

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