Article by our neurologist at the universi... - PSP Association

PSP Association

9,694 members11,589 posts

Article by our neurologist at the university of Florida about PSP

jimandsharynp profile image
20 Replies

Just thought I'd share this article by our neurologist (we really like him). It is about PSP and informative. Here's the link.

mdc.mbi.ufl.edu/for-patient...

Jimbo

Written by
jimandsharynp profile image
jimandsharynp
To view profiles and participate in discussions please or .
20 Replies

Hi Jimbo

This article is very good and covers the salient points for those requiring a good overview of PSP.

Thanks for sharing this reference.

All the best.

deew profile image
deew

Thanks Jimbo

Dordor profile image
Dordor

Thanks ,interesting article, I will show it to my Doctor..

Dordor

shasha profile image
shasha

thanks jim it was a most interesting article - plus i went onto a couple of the links

Thank you very much. Very good article. I find it in particular interesting what he says about occupational therapy, massage, and blepharitis. The issue of pain related to this topic has come up many times on this forum as well as dry eyes.

I am amazed how little GP's seem to know about those issues, shocking. The only thing they do, if anything, is to prescribe pain killers. It makes my blood boil. It is about time that GP's and even some neurologist get up to speed and do something about the causes of aforementioned problems other than simply trying to treat the symptoms.

cdhollingsworth profile image
cdhollingsworth

Very good article. Thanks for sharing.

terrirt profile image
terrirt

Thank you. That was a good article.

laroux profile image
laroux

Thanks Jimbo,

Good to know it's being researched in our part of the world! Nice article.

Joan,

Alberta, Canada

whisperer profile image
whisperer

I have saved this article for the next "person" who asks me what I am suffering from. Last time I fell I was on crutches in a restaurant. I do not drink but my wife on an enquiry by the manager said it must be the "whisky" she already explained I had PSP He prompttly whisked out an AA pamflet and gave it to her. Laughter is the best medicine....sometimes

Whisperer

Cape Town

South Africa

jimandsharynp profile image
jimandsharynp in reply towhisperer

That, my friend, is very funny. I needed that today.

Jimbo

CGC1 profile image
CGC1 in reply towhisperer

Sorry maybe I didnt understand.

Were you actually drinking whiskey?

And you have PSP?

I thought alcohol and PSP were a terrible combination!!!

whisperer profile image
whisperer in reply toCGC1

On the contrary i do not drink. my wife went to great effort to explain to the manager that i suffer from psp and to make the table arrangement accordingly ie accessibility for myself. none of had a drop to drink of alcohol but getting up from a chair (which was not at all accessible) with crutches I fell. The manager rushed over and after all the explaining my wife did she was so frustrated with the manager that she blamed on a non existent whisky! THe manager immediatly jumped to the conclusion that i had a drinking problem although there was no alcohol on the table and gave an AA pamflt to my wife. Hence next time I get treated to a meal my wife has vowed to take the article Jimbo suggested with and have an education session. She printed a copy and gave it to the manager who was most apologetic but it shows people jump to conclusions.and need to be educated!!!

Have a great day, will have my nightcap just now a glass of milk without the 'whisy"!

CGC1 profile image
CGC1 in reply towhisperer

Ok. Thanx. I understand.

I was very confused.

My dad (66) has been diagnosed w/ PSP and if he drinks even 1 little glass he'll get completely wasted; cant walk, cant talk, cant think, cant see. Even w/o alcohol he has difficulty doing those things.

easterncedar profile image
easterncedar

Thanks so much for the article. Lots of good information, easy to understand. It is going to help me a great deal as I try to explain to my sweetheart himself and to his family and friends what is happening to him. He so much wants to believe that there's a treatment out there that his (very good) neurologist hasn't tried. We've tried and stopped sinemet and amantadine, still using CoQ10 and selegiline. I think the CoQ10 has helped to slow the progression. On we go! Thanks again.

jimandsharynp profile image
jimandsharynp in reply toeasterncedar

Thanks. You never know what might work. I remember my dad had shingles and tried crazy things. He rubbed peanut butter on it then later trid WD40. Lol

Jimbo

easterncedar profile image
easterncedar in reply tojimandsharynp

I think I'm going to try the turmeric next - maybe then WD40!

jimandsharynp profile image
jimandsharynp in reply toeasterncedar

Ha ha you made my day. I needed a laugh.

jillannf6 profile image
jillannf6 in reply toeasterncedar

Hi turmeric is supposed,to, help lo,Jill :-)

easterncedar profile image
easterncedar in reply tojillannf6

I've got empty capsules and plan to fill them with turmeric for him, and in the meantime I add it to everything I can when cooking. I expect us to develop a nice sunny daffodil glow at least!

SWISS_MISS profile image
SWISS_MISS

Good article

Not what you're looking for?

You may also like...

Spread the word about PSP!

I had to go into London today and my car broke down. Bad luck. But it broke down within 100 meters...
Kevin_1 profile image

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms?

Is there any actual medical test related information about PSP that explains the differences...
Dennis-Wburg profile image

The end of PSP journey

On Tuesday October 29th my mother passed away and PSP journey has ended. The journey of watching...

Query about symptom of neck position in PSP!

I would like to assess the symptom of neck flexure in PSP. The typical position repeated in most...

In the dark about psp

hi everyone,my husband George was diagnosed 3 years ago and is in wheelchair but other than being...
lindy21 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.