Information in Urdu language

[Possibilites]

Hi everyone,

My mum has recently been diagnosed with PSP. We are still trying to understand and absorb everything. I wanted to ask if anyone knows how to find information about PSP in other languages such as urdu. Thank you

[sammy90210]

I don't think there is info in Urdu - but I'm from Pakistan and we can talk/write in Urdu - plz feel free to DM me - I was primary caregiver for my dad so I can guide/assist

[easterncedar in reply to sammy90210]

Hey Sammy - I haven't seen you here for a while. How are you doing?Ec/Sarah

[sammy90210 in reply to easterncedar]

Hello ec/Sarah - it's lovely to hear from you ma'am - I'm doing well thank you it's hot here in the Pakistani summer (40C usually) but then we get to eat some yummy mangoes :))

how are you doing? I hope you're keeping well too

[easterncedar in reply to sammy90210]

Thanks for replying, Sammy. I'm so glad to hear you are doing well. The news about the heatwaves is very worrisome; nice to know at least you have good mangos, but I don't know how you stand the temperature. I worry about the animals, too.

I'm fine, overall; looking to retire from my job of 35 years next month, and will enjoy the freedom. I hope to work locally on environmental issues as well as to have some time to garden and otherwise play outside.

[sammy90210 in reply to easterncedar]

It's wonderful to stay in touch with nature - I live with my mom (traditional in Pakistan) and I try to take her out for walks or shopping often - best wishes

[timbowPSP]

Sorry P, I cannot suggest much re Urdu. But having PSP for past few years (I am now 80) I have made out 3-4 pages of information about PSP, and what I have been doing to keep it only slow developing - without drugs. I can splatter the information all over here - or best if you will tell me ur email address so I can send direct. It's in English, and has many of the main factors you need to look at. Best wishes TIMbow

[Possibilites in reply to timbowPSP]

Thank you so much for ur kind reply

[ChickensandBees in reply to timbowPSP]

Would you mind sending me the information you have on PSP?

[timbowPSP in reply to ChickensandBees]

YES sure, happy to send. Would you mind sending me your email address .... much more convenient. Thanks, and best wishes. TimbowPSP

[RW22]

Sorry to hear about your mom.Have you contacted the pspa helpline, they might have fact sheets in different languages? Or point you in the right direction. I hope that helps

[Possibilites in reply to RW22]

Thanks. I’ll call them and check.

[Zerachiel]

Hi, the link below is to an information page on PSP, the language choice is on the top right of the page which includes Urdu

epda.eu.com/about-parkinson...

[Hungryhippos]

Hello. I speak Urdu and have been a caretaker for my father for the past five years and counting. Please feel free to reach out for any questions. I am in the U.S.

[Possibilites in reply to Hungryhippos]

Thank you so much. I really appreciate it