not about PSP at all

[Fiona_McL]

Nope, this one is all about me, me, me. It's a bit of a 'sorry for myself' grumble, so feel free to ignore it I've been surprised at some of the physical manifestations of grief, so, in my normal fashion, I decided to write about that!

memineandotherbits.wordpres...

[Kathy]

Hi Fiona,

Have to disagree with you I'm afraid!! It IS about PSP, its about the hole that Herself and PSP have left in your life. A hole that can't be filled in 4 weeks. Sorry to hear of your physical suffering as well as your emotional suffering. Hope you will soon be feeling more like yourself.

I do hope you continue to blog, I love to read your blogs. They're so honest and insightful and have me laughing and crying - often at the same time!

Take care

Love

Kathy xxx

[jillannf6]

hi fiona

your blog is so" real" - plz continue with them

i do not know what to say - do your dream about your mum and that she is sitll here?

i had this problem 4 many years when a dear friend died in her 30s of maliglnant melanoma - and it was ony solved when i finally visitedi her grave ( i had not been able to go to the funeral and realised that i had never mourned her passing)

so it is early days yet but i do hope you have a better day tomorrow

( i am going to a Psp meeting in Liverpool )

love jill

xx

[Hidden]

Hi Fiona

My husband died three and a half years ago and I still haven't got over it.

Sometimes I think it is worse now than it was when he first died.

Someone said recently that she only really realized her husband had died after about 5 years. I know exactly what she meant. Bereavement takes all shapes and forms and as we aren't all the same we cope with it in different ways.

I now feel that going to the cemetery is a way of feeling close to him albeit sad. In the beginning I couldn't walk away from the grave. I kept thinking I was abandoning him.

Life will certainly never be the same again.

Kind wishes

Lina

[Julie-Alabaster]

Hi Fiona,

It's been just over 6 months since my dad went on his 'world tour'. The sadness is getting worse as it is starting to kick in his not here, but I am still thinking he is.

Your blog's are always from the heart, They make me cry and smile.

For me, I cut myself off alot from social sitiations at the start and even when I am in them now I still sometimes 'am not there'.

This gap can never be filled the void will always be their and so will the sudden crying or the chest ache that's what happens whrn someone you love goes. Everyone acts differently I see that in my own family. You just need to carry on going on the rollercoaster, the good days the bad days the I cant stand people getting on with their own lifes days whilst mine sometiems feels like my world has stood still. The drown my sorrows days.

I try and think he is in a better place now, travelling the world, eating loads, drinking bitter and has all his dignity back and the suffereing has left him.

As Lina said life will never be the same again but think how lucky you were to have herself in your life for so long :)))))

xxx

[PSPA_DebbieB Partner PSPA]

I think we all handle grief in different ways. From my understanding, those caring for loved ones with PSP/CBD, the disease becomes such a part of your life that you are constantly busy helping and supporting them you forget about yourself. Now that they have gone, you will miss them always, but in some ways this is now 'your time'. Time to rejuvenate, recuperate, do the things you have always wanted to do, but have been unable to...maybe by doing things for yourself, you will slowly start to heal from the pain of losing someone so precious. Just taking one day at a time, being grateful for a new day and enjoying time with family - who may have not had a lot of attention whilst you have been caring - is, I think, a good place to start...