I'm thinking about doing some sort of video with clips of my Dad and the day to day struggles, like having a conversation with him & watching him having help try to stand up from his chair etc.
I would be doing this in efforts to give people an insight into the real PSP (I know every case is different but I don't feel there is a realistic portrayal in easy access).
I know it will be hard to watch but would people support this?
Hi hannah,
I think it would be a great idear its about time people realy
saw what life is like struggling with what PSP/CBD can throw
at you on a daily basis, Me and my therapist are in the process
of doing some filming of what her treatment can do to help people
im affraid im the pupil and shes the teacher but thats life, keep us
posted of your progress i know it will be hard for some people to
watch but the truth is worth seeing,
take care
ray xx
hi Hannah
yes it will be hard for people to watch as there is no "b4 and after" but well worth it !love jill
Thank you Hannah for your recent blog and for your willingness to do a video of your dad's illness. I think this would be helpful to people who have PSP and also to their carers. God bless and good luck with all that you are doing.
Love,
Judy
Hi Hannah,
It would be very hard to watch,but yes I would be willing to see the video.
Bless you both.Keep possitive.
Linda x
Hi Hannah,
As long as your dad is happy with it,that would be a great idea. We dont have many videos of people living with PSP and for those who have never come into contact with the condition it can be hard to describe.
This would be a great way of raising awareness, so I'd say go for it!
I agree with Helen 
Hannah, you are doing such a great job raising awareness of this awful illness, and as long as your dad understands why you are making a video of the condition and is happy with it, then I would say "go for it". We need to make more people aware of this horrible, horrible illness and your efforts are certainly applauded by all of us who are affected by it. You are much younger than most of us on here and your energy is apparent in the way you are dealing with this. Long may you continue in your efforts and love and best wishes to your dad. Keep us posted of further progress on the video.
Take care..................SuzieQ xxxxx
Hannah,
Have a chat with your Dad and the rest of the family; be really clear what you are going to do and whether or not there are going to be any limitations on what you do or do not film and then go for it. I am sure it will be useful to raise awareness and to inform families of the newly diagnosed of what may lie ahead. Try and include some of the good times too. Let us know what happens and if we can help in any way.
hmfsli
I agree with this last comment. From a moral and ethical perspective it would be important for your father to be consulted and if he is able to give his consent -to get his permission first. It is also important to discuss the matter with the rest of your family to allow them to express their feelings about the filming and also to be clear about what is and what is not to be filmed. Above all your fathers dignity and personal wishs should be protected and respected.
PSPA_KatH PSP/CBD Nurse Specialist
My dad...
My lovely Dad
Dad
My dad passed away
