Need Help on the options to comfort my dad

[priest78]

My dad has PSP. The diagnosis have been done on Dec 2023.

However we have been seeing the symptoms for around 2 years. I can now understand that they were PSP symptoms.

My question would be about the equipment to comfort him at home. Till the time comes we need to take him in hospital permanently.

Any methods you use while taking care of PSP patients at home will also help a lot.

Thank you!

[OllieFisher1]

You don't describe his mobility now. My father just had a disability rail in both the toilet and shower which he used. He was also given a shower stool but never used it because he did not need to. His legs gave way one day and subsequently could only take a few steps on his own. He skipped the use of a walker, cane etc and had to go into a resthome. Everyones different.

[timbowPSP]

Hiya! Ur Dad has had an amazing long life, and now .... PSP - not great! I am 81 diagnosis PSP past 5 years. I can send my personal 'journal' to you for interesft with lots of information and suggestions, but it may be too late for you/ur dad! If u want me to send the 7 pages pls send me ur email address. Best wishes TimbowPSP

[priest78 in reply to timbowPSP]

Thank you timbow. I sent my e-mail address

[Shadows167 in reply to timbowPSP]

Hi timbowPSP my Dad was diagnosed with PSP in August 2023 having been previously diagnosed with Parkinsons, would you please send me a copy of your journal to [e-mail] Thank you

[Jesma21 in reply to timbowPSP]

Can you send the copy to me as well. thank you.

[timbowPSP in reply to Jesma21]

Happy to send my information sheets, but need ur email address pls. Timbow

[45purple in reply to timbowPSP]

Hi timbow could you possibly send me a copy of your journal please. My husband was diagnosed with CBD in 2022 but had signs about 2 years prior in November 2023 this was changed to PSP. Any help and advice would be fab. Thanks.

[LuisRodicioRodicio]

Hi priest78!!

I sent you a message by internal chat.

Hug and luck.

Luis

[priest78 in reply to LuisRodicioRodicio]

Thank you very much Luis 🙏

[Goodact]

Physiotherapy as soon as possible if he can get to pool hydrotherapy is great plan for enormous changes we have installed 17 rails in our house two concrete ramps at doors night lights that get activated if moving about at night there is a parkinson specific rollator that helps with psp that has reverse breaks bigger tv audible books always have a positive agenda going to beach planning short trips having a goal week in week.out keeps.them positive movement is everything the more they move the better the life go to the dentist early and get a plan in place and explore medical cannabis options it helps my partner alot

[priest78]

Thank you very much Goodact 🙏

[Loveispatient23]

Hi priest78, my father in law was diagnosed in October 23, he is 87, but looking back these symptoms have been going on for nearly 4 years.

As others have said, getting the appropriate grab rails in place, especially in the toilet. Not sure how things work in Turkey but I am so glad I have found this site as everyone is going through their own journeys. Look on the PSPA website for information. There is a lot of great practical adviceon here and its a very supportive community. Getting appropriate equipment like grab rails, raised toilet seats, recliner and raise chair, walkers, wheelchair, organising a care package and having a lot of family support if you can.

All the best to you.