NEUROLOGY CHECK UP: Just a update on my... - PSP Association

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NEUROLOGY CHECK UP

ray-wiffen-1958 profile image
25 Replies

Just a update on my visit to the neurology clinic today its

the first time i have been for a check up at the clinic for

just over a year, I went in 20 mins late sat down and Dr sharief

talked over what had been going on in my life for the last year

then he told me to get on the bed so he could examine me he

did quite a few tests then said ok you can get dress and come and sit

down we need to have a chat your not going to belive what im

about to tell you, he said the CBD has not got any worse since

he last saw me infact there is a slight inprovement in my

condition i nearly fell off my chair he said its the first time

he has ever known any body to show signs of inprovement,

he also put the inprovement down to the holistic therapy ive

been reciveing called (EMOTIONAL FREEDOM TECHNIQUE)

which i have been reciveing since about febuary this year

i knew i had inproved a little bit but to be told by my

neurologest just made my day i cant stop smileing, weather

it will continue we will have to wait and see but its a start, so

the first thing i did when i got out of hospital was to ring my

holistic therapist and tell her the good news it just proves if

you dont try these things you dont know weather they will

work, It has made her day as well she cant stop smileing now,

take care

ray

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ray-wiffen-1958 profile image
ray-wiffen-1958
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25 Replies
HannahDaykin profile image
HannahDaykin

WOW!!!!!

AHHH I'M SO PLEASED FOR YOU!!

Couldn't help but smile and get excited for you as I read on.

Let's hope this is just the beginning.

Hannah x

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to HannahDaykin

hi hannah,

you just have to smile at times like this if you cry

at least they will be tears of joy,

ray xx

SuzieQ profile image
SuzieQ

Hi Ray

That is such good news. I hope and pray it continues for you. I too am smiling reading your blog. Keep up the good work.

Take care.........SuzieQ

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to SuzieQ

hi suzieq

hope your keeping well im still smileing i cant

even go to bed because im on a high its as all

my birthdays have come at wonce,

take care ray xx

Faiza profile image
Faiza

Excellent news!

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to Faiza

hi faiza

hope your keeping well

and thanks for your comment

take care

jillannf6 profile image
jillannf6

hi Ray

great news!!

i am so delighted for you and your therapist!

i am awake oo early again but shall try and get anpther few hoursin now

love jill

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to jillannf6

hi jillann,

hope you are keeping well sorry to hear you

are haveing trouble with your sleep its probley

down to the meds thanks for your comments

take care

luv ray x

kay1 profile image
kay1

we all share your joy,

X

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to kay1

hi kay,

hope your keeping well i still cant stop smileing

at the moment i will come back down to earth with

a bump some time to day and realise its only a start

but not a cure,

take care

ray x

Louise-Alabaster profile image
Louise-Alabaster

Thats great news Ray - you never know what works - I agree to try anything - really pleased for you and your family xx

LindanTerry profile image
LindanTerry

Hi Ray,

that is great news for you.I am so pleased for the good news...we dont seem to get much of that.Keep going :-)

Linda

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to LindanTerry

hi linda,

hope your keeping well i agree it makes a change

to get some good news for once lets just hope its

not short lived,

ray

ray-wiffen-1958 profile image
ray-wiffen-1958

hi louise,

hope your keeping well im on such a high at the

moment i dont know what to do with my self so i

booked up to go and see my therapist so we can start

working on the bits that havent inproved you take care,

ray xx

Louise-Alabaster profile image
Louise-Alabaster in reply to ray-wiffen-1958

I can imagine - it brightened up my morning so I can only imagine what its doing for you! So pleased for you and just think if you find some sort of cure or prevention of it progressing - someone has to so why not you - just great news xx

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA

What exciting news for you Ray...

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to PSPA_DebbieB

hi debbie,

hope your keeping well yes it is exciting news

i have been i a high since yesterday afternoon,

ray x

Kathy profile image
Kathy

Nice to hear some good news! :-)

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to Kathy

hi kathy,

hope your keeping well yes its all good news so far

Fiona_McL profile image
Fiona_McL

Ray, such fabulous news! It's lifted us all, so I can't even imagine the high you are on :)

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply to Fiona_McL

hi fiona,

how you doing hope all is well it is good news

i just hope it lasts i keep thinking im going to

wake up and its all a dream lol

ray x

hazelb profile image
hazelb

Hi Ray....fantastic news!!!!!!!!!!!!! I know it's not a cure but to have some improvement is absolutely brilliant. I think I'll have to look into this EFT .

Take care & definitely keep smiling. Love Hazel B xx

ray-wiffen-1958 profile image
ray-wiffen-1958

hi hazel,

hope your keeping well i cant stop smileing im just off to

go for some more eft ive had it now i wont some more

you take care

luv ray xx

jillannf6 profile image
jillannf6

hi ray

how r you keepign?

i too saw the neuro yesterday and think overall i am better with my balance ; and my walking has inproved

(eyes are worse as are the fine motor skills)

But i am falling a lot less than i was -unless stressed

He will see me again in 6 months-good news (apart from the fact that it si mdi feb and the worst time of year 4 me)

I too feel much better and think i must have a slower version of the Psp

(1 of the American bloggers says that!) I look v well too and people cannot believe I have a termianl illness, so what the heck

life has to be lived like you r doing

I am off for my Big Holiday next week to stay in N Yorkshire near my dad and cousins - all of whom i have not seen for ages

take care and keep up the blogging

love jill

ray-wiffen-1958 profile image
ray-wiffen-1958

hi jill,

hope your keeping well im keeping ok thanks glad to here

your neuro appointment went well thats what ive been told

that i have the slower version of cbd so thats good news for

both of us i had one bit of bad news this week my holistic

therapist has turned funny with me for some reason hasnt

spoke to me for nearly a week thats a shame because i

was realy showing some inprovement with her help now ive

lost her help i havent been able to sleep propley and i have

this empty feeling in my tummy but i will get over it i hope,

yes live life to the full thats my way of thinking too, glad to

here your getting away for a holiday i hope you have a great

time in n yorkshire and you look after your self,

luv ray xx

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