peter or peepee as my daughter calls him xxx - PSP Association

PSP Association

9,252 members11,348 posts

peter or peepee as my daughter calls him xxx

emazros profile image
3 Replies

my mum finally fell head over heels in love only 2 years on peter was diagnosed with parkinsons, nearly 4 yrs ago diagnosed with psp,he was my mums boss at work (staff nurse) its sad really i cant remember totally what he was like then i only know him as now, he means so much to us all, he is sooo inteligent always reading and watching football on the tele, my mum has been a carer for years in her working life and now cares fulltime for peepee, i honestly dont know how she does it ? i try to help when i can but what can i do? what can peter do to occupy himself he is to embarressed to eat out, cant walk far, hates wheelchair its so heartbreaking. I dont know where im going with this blog but hey it feels good to let it out. my mum is the best, i know she cries but i want her to know im here mum, peter we love you your a top guy! xx

love

EMMA x

Written by
emazros profile image
emazros
To view profiles and participate in discussions please or .
3 Replies
john_z profile image
john_z

Hi,emazros.I just want to wish you lots of strength and courage in this difficult situation.I am sure you 'll find the way to help your mum and peter,we always do for the people we love.In this community you 'll find very useful informations and above all,people willing to help you.Best wishes, John.

jillannf6 profile image
jillannf6

hi EMAZROS

DITTO from me as john saysin hsi repluy

the wheelchair hting isstrange as people of myh generation usuallly do not mind

So many poeple are out there inhwheellchairs or suign mobility scoooters or 3/4 wheel frames tha t it is not liek it used ot be

[plz keep on the site and get in touch with kat haines the \psp nurse who si brilliant

lol Jilll

:-)

emazros profile image
emazros

thanks john and jill, your good wishes mean alot,

the wheelchair thing is more to do with pride, its so hard psp is awfull x

emma

You may also like...

Today the district nurse called at my request.

Some of you know that my husband suffers from ulcerative colitis as well as PSP. It started in 1977...

We call him Leo - Clenching Hands

it helps that mom loves animal prints — I found small pet toys at the store (I know a pet toy?);...

Saying hello on behalf of my mum who has PSP and her daughter - primary carer

day and night. She says she does know why she does it. It is involuntary although she can suppress...

Finding it hard to cope with my nan's condition

its like she knows what i'm saying but feels like she doesn't want to know. I've never told her...

just lost my mum to PSP

here. I dint know where else to go, so here I am, trying to understand PSP. My dear mum Carole was...