PSP Association
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peter or peepee as my daughter calls him xxx

my mum finally fell head over heels in love only 2 years on peter was diagnosed with parkinsons, nearly 4 yrs ago diagnosed with psp,he was my mums boss at work (staff nurse) its sad really i cant remember totally what he was like then i only know him as now, he means so much to us all, he is sooo inteligent always reading and watching football on the tele, my mum has been a carer for years in her working life and now cares fulltime for peepee, i honestly dont know how she does it ? i try to help when i can but what can i do? what can peter do to occupy himself he is to embarressed to eat out, cant walk far, hates wheelchair its so heartbreaking. I dont know where im going with this blog but hey it feels good to let it out. my mum is the best, i know she cries but i want her to know im here mum, peter we love you your a top guy! xx

love

EMMA x

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Hi,emazros.I just want to wish you lots of strength and courage in this difficult situation.I am sure you 'll find the way to help your mum and peter,we always do for the people we love.In this community you 'll find very useful informations and above all,people willing to help you.Best wishes, John.

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hi EMAZROS

DITTO from me as john saysin hsi repluy

the wheelchair hting isstrange as people of myh generation usuallly do not mind

So many poeple are out there inhwheellchairs or suign mobility scoooters or 3/4 wheel frames tha t it is not liek it used ot be

[plz keep on the site and get in touch with kat haines the \psp nurse who si brilliant

lol Jilll

:-)

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thanks john and jill, your good wishes mean alot,

the wheelchair thing is more to do with pride, its so hard psp is awfull x

emma

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