Husband with PSP

[Poodlelady1]

Hi there

My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s

He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor

His mobility is very poor, he had another fall today.

The lack of empathy is very common and he is very self centred

[timbowPSP]

Hi P'lady, sorry to hear ur news. I am 82 and PSP diagnosis 5 yrs ago. Seems the older we are the slower it develops. Still active/able but no driving now. I have made a 7page summary of my history/actions/attempts to get better, and other stuff, and happy to share it. Just send me ur email address, and I will send.. Very best to you both. TimbowPSP

[45purple]

Hi sorry about your husband’s diagnosis. I can relate to how you feel. Karol is the very same and it’s hard to accept it. Karol is 79 next week diagnosed in2022 but signs 2years prior with a big decline in the last 6 months. Been in hospital 5 weeks and has had a peg fitted as he’s nil by mouth. Stay strong hugs from Bonnie Scotland 💜

[Tulipstaffie]

So sorry you are in this terrible situation that a number of us find ourselves in. My husband also showed signs of what I thought was Parkinson’s due to the hand tremor. He was very restless and slept most of the day. He was diagnosed with PSP and started on Madopar which stopped the restlessness and slowed down his tremor.

He also suffers with apathy and hardly speaks. We have good and bad days. My only advice is try to stay strong and take time to look after yourself. Take each day at a time and know you can’t predict what will happen or when.