Neck Supports

[SimoOT]

Hi

I am working with a gent with PSP , 3 years in, I wondered if anyone has any recommendations for neck supports. I have looked online but know that sometimes it helps with personal experience to hear what has helped others.

Thank you in advance

[Javan]

headup collar was the only one which helped the old bag as it also supported the chin.

[SimoOT in reply to Javan]

Thank you

[Leosta]

I can't help you as my husband never needed a neck support with his type of PSP. I just wanted to say how impressed I am that you are trying to find out more about this awful disease and wanting to help your patient and maybe those in the future. I wish more medical professionals would research into PSP as there is a lot of ignorance.

Maybe the PSP Association could assist you. Good luck in your quest.

[SimoOT in reply to Leosta]

Thank you, I feel a have a duty to find out what I can to support but it is difficult, also funding is dire.

[Scottoppy]

Look for "Headmaster" neck support, my wife was given one by the orthotics dept. at the local hospital. Only had it a short time but it works well. Details on Google.

[SimoOT in reply to Scottoppy]

Thank you so much

[Tindb]

my wife has cbd and has neck muscle strenth. I don't know whether this is the case with you patient.

I tried a neck collar but this is only effective during physiotherapy

Physiotherapy on the other hand is necessary to avoid the neck muscles in getting shorter and stiff.

When she wakes in the morning she's mostly relaxed. Then it's possible to do some that daily neck stretching.

What also can help is to get concentration upward for eg. watching TV in case the patient is interested in it.

I hope this can help.

[SimoOT in reply to Tindb]

Thank you so much