My father with PSP

[chonamona]

Hi all from India. I can't even express what we are going through with my father having PSP. I am the main caregiver/ decision maker for him. Only handful of people understand about this condition. Just reading all you people's posts helps me to process my emotions and prepare for what will come next.

Very thankful

V

[AliBee1]

Hi from England. I am so glad that you have found that this site helps you. It can feel like one is very much on one's own at times as a carer bu this international family are all with you in spirit. I know that one night I was getting nowhere with getting help and in desperation asked a question on here and got an answer from Canada within a few minutes. It was as if a hand had reached across the waters to me and kept me going. Love and big hugs to you and your family. AliBee

[chonamona in reply to AliBee1]

AliBee, thanks for your kind words.

[MARKJ9]

My father who was in India was diagnosed with PSP. For the first 6 months we weren't sure what he was going through. After the diagnosis, he lived about 6 months. His decline was very rapid. It was hard for us to accept. When he visited us in the US, we'd engage him in debates about current issues. We did see some memory loss and balance issues. But, we had no idea that we'd have just another year with him. It is difficult to see someone who was so full of life slip into this state in a matter of months. My dad was 87 when he left us. My sympathies to you. It is a cruel disease. I hope they will someday find a cure for this.

[chonamona in reply to MARKJ9]

Yes. That feeling of helplessness is taxing. I try to keep him comfortable. But could never be sure what he is feeling.

[AJK2001]

Hope you continue to find this site useful, I know I did, at times it seemed the only place people understood and it's support kept me going. xxx

[chonamona]

Yes true. Thanks for reaching out .

[easterncedar in reply to chonamona]

Hello from the northeastern US. This site was a sanity saver for me, and so helpful on a practical level, too. Don't forget to take care of yourself as you can as well. The caregiving is exhausting, and it can run a person right down. Still, I will always be grateful that I was able to do it. Do stay in touch. This community is a wonderful resource. Best wishes. Sarah