It was 13 day from when I belive he had a uti and maybe even chest infection that just got a hold of him, he said two weeks before he was done, he was kept comfortable at home,he had a nursing team and pain meds . in the very end it was peaceful passing. My guy my love left me may 9 at 10 am.
Neil aka dude is gone but never forgotten.
Thank you to all on this lifeline site,had I never found you all here I'm pretty certain I would not of made it without your wonderful words of wisdom and moral support.
Oh Dee I am so sorry my deepest condolences to you and your family, such a sad time, sending you a big hug, grieve in your own way lovely lady. Thinking about you at this sad time. Yvonne xxxxx
Oh Dee, I am so sorry to hear that Neil has died. May he rest in peace, finally free from this evil disease.
We are in strange times. I hope all the necessary arrangements are as smooth running as is possible.
Please take of yourself now. Get as much rest as you can. Grief is even more tiring than caring can be! Plus you will need time to recover from the physical side of looking after Neil. Use your hard learnt skills on your self now.
Sending very large hug and much love
Lots of love
Anne
Sorry to hear.
It is so unreal. A lifetime passes so fast.
I know I wouldn’t have made it through Larry’s PSP had I not found this site with the support and information on it.
Thinking of you at this sad time Dee. You know he is now free and at peace. I hope you have support during lockdown and are able to grieve in your own way, there are no rules for grieving.
I'm so sorry Dee. It's a tough time any way but at present is even more difficult.. I hope you have plenty of support. The next stage is so hard but you lnow you did all that was possible to ease hiz path. Much love fron Jean xx
I am very sorry to hear you sad news, , I have also found so much good advice and guidance from this site, thinking about you and your family take care,, , Brenda xxx.
You both put up a great fight and it’s hard to let go, but now his suffering has come to an end. I’m so sorry for your loss. Your photo is worth a thousand words and yet I’m having trouble coming up with what to say at such a horrific time for you. I’m glad that he left peacefully. Sometimes that’s all we can hope for. Be good to you now!
Am pleased you were able to keep him home and comfortable. I hope the past few weeks will give you some comfort and peace in your loss, knowing you were sharing the true situation with Neill.
Now is time to let it all go, you will feel numb, especially still being in lockdown. Remember to eat! Do no more than you have to for the time being.
Keep in touch with us here. Many of us understand how you truly feel. You don't have to answer "I am fine" !!
Enjoy the good memories and hang in there, drift, until you feel ready to venture 'outside' again.
I am so sorry your lovely Neil has passed away, may he rest in peace. I pray you will find comfort that he was at home and passed peacefully.
You have been amazing in all your caring for him, now it's time to rest and take care of you. Grieving is not easy, so be kind to yourself and just take one day at a time. Hoping you have some support close at hand.
I am so sorry to hear this, please take care of yourself now, you have given so much. Take your time get plenty of rest and grieve at your own pace. This site is a lifeline full of lovely people that understand. Take comfort in the fact that your lovely Neil is pain free, PSP free and never far from your side. Thinking of you and sending lots of love and hugs
There are no words to ease the heartbreak, Dee, grief is a unique journey for us all. One day at a time now, as you begin find your way through the inevitable ups and downs.
Dee, I sorry the loss of your companion. He was and will always be with you in your heart. I'm happy that his passing was peaceful and that you were able to have the healthcare resources you needed at your home. I wish you peace and courage for the days to come. Estelle
So sorry Dee, but so glad to hear he was at home in familiar surroundings with you. It's all any of us would want at the end of the day. Thinking of you. xxx
I echo what you sad about this site and all the wonderful helpful people on it. I have learned so much from all who are traveling the same rough road.
Take care, it can be so lonely not having your spouse and the closeness you have shared, no one can replace that....
I put my husband in a care facility mid April....I was so lonely and missed him so much that I went to get him last week. During the time he was gone I spent time interviewing for someone to come in daily to help me....I found a lady that will fill in most gaps. I felt so thankful he was still here to touch and love, I could not be separated from him, that will happen soon enough, I cherish every moment....
I want to apologize. You have been on my mind a lot, but my home computer seems to have devoured all my messages to you. I came into the office just now especially to write to you.
That's a wonderful picture. I am very sorry about Neil. You were, as Dee in BC, one of the first people I knew on this site, well before I was bold enough to chime in for myself. You went off on adventures, so bravely, after the diagnosis and then have lived through years of the dramatic and heart-breaking ups and downs of the disease, steadily persevering and sharing at regular intervals. It's been a long road, though it may seem too short now. You fought hard and kept Neil home and saw him to a peaceful passing. Well done.
I didn't find that having anticipated the end made the grieving easier. It was still a shock for me. Giving myself permission to rest and weep and remember and do what I could to take care of myself was the best I could manage, and I wish you all the same. This pandemic isn't helping. I hope you aren't more on your own than you need to be.
So sad to hear that your man has left you Dee, it’s a shock even when you are expecting it.it is 2 years today that i lost Ben and ski can feel your pain i relive the day of events when Ben died.
Dee, I am so very sorry to hear of your loss. Please know I am sending my love and my prayers for your comfort. My guy and I are on this journey, and today I had to call his hospice nurse who suspects a uti.
I am so sorry for your loss of Neil. You had such a long, long journey through that horrible disease with him! Thank heavens the End, at least, was kind.
I hope you have close family and friends to get you through this time of loss. Now is the time to put YOUR life and health back together,
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My dad's gone.
my hero Geoff 
Goodbye my love
My darling Husband is free of the illness now
