I remember when I first joined this forum as patient a few years years ago, I distinctly remember some of the veterans warning me that I might become unnerved about some the posts I might read. I gave those concerned my assurances that I was pretty thick skinned and my goal was to learn how to be a better patient as my disease progressed. Life has a funny way of happening as you go about making plans and you never know what it has in store for you. As someone who is cared for 3 hrs. a day by a couple of wonderful PSWs, I never imagined to find myself thrust into the role as caregiver and the cared for. I've experienced the same situations many of you have shared here... and then some. I did this out of the deepest love and respect for my wife Trish - there was no greater honour. I learned more about patience and humility in the past three months than in any other time. But heaven could see she was tired, it knocked on our door and she answered. Peace... perfect peace my princess until such time we will continue our fairy tale.
Tim x
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Oh Tim, no words can help but you are in my thoughts and prayers. May you know His special peace at this difficult time knowing Trish is no longer tired, is in a better place and when the time comes you will be together again. Oh what a reunion that will be.
Hi Tim, this is so very sad to hear, I was so shocked to read your post, sending hugs your way to you and your family, I felt like I new Trish, through your books, she will be very much missed, I am so very sorry for your loss Julie xx
Dearest Tim. Words cannot express my thoughts at your loss. Through your books I have come to know Trish too and she sounded such an amazing person. She will be so missed by all those that she came into contact with. My prayers are with you to support you and Matt until you can be with her again. Angels to care for you. God bless you. AliBee
Tim, I am so sorry. God never asks us what type of burden we would like to bear in life, he just knows who he can count on. Trish is finally at peace and you should be as well knowing you did your very best at being a wonderful, loving husband.
Rest and cherish the memories that you made together. If the picture is any indication, you must have had a lot of them.
So very sorry to hear this sad news. Words are just a drop in the ocean at such difficult times, but know you are in my thoughts as I know you will be in so many peoples on this site and elsewhere.
Tim, my heart hurts for you. I am so very sorry to hear this sad news. I can only offer my prayers that you can stay strong and somehow carry on without your loving wife being physically by your side. I’m sure her spirit will be watching over you. Love never goes away...it just changes form. Hugs to you.
My heart breaks for you. This disease is hard enough to bear with a loved one. Can’t imagine what you are going through. Many hugs from a fellow sufferer.Jayne x
I am so so sorry to read this, I too feel as though I know you both so well from reading your books ( I am still reading the second one) My heart is truly broken for you, please take good care of yourself and your family at this difficult time. There is a lot on here about grief so keep talking to us as it’s another difficult journey that you will be making and it’s exhausting so please get plenty of rest and accept all the help that you are offered. The photo is beautiful. Sending lots of virtual hugs
I am so sorry to hear this Tim. You have been so supportive and encouraging to many on this forum whilst you go through the horrible journey of this disease, and now you have the role reversed. I can't find the words but know you are in all our thoughts and prayers. God Bless you Tim and God Bless Trish. May she Rest In Peace. 💔💔😪😪🙏🙏
Oh no Tim, I'm so sorry that you have lost the love of your life, particularly difficult given your own situation. Your post displays what a special lady she was and your faith will help to see you through. I don't have that faith but it must be a huge comfort at such a difficult time
I have found it increasingly more difficult to read and respond to posts here after loosing my wife to this terrible disease two years ago, but your post caught my eye and my heart. I wish I had words of comfort, but my well is dry. However, my thoughts and prayers go out to you. Prayers of comfort, strength, and healing.
No one told us that when we are married that one of us would out live the other. I was convinced that my wife would out live me. All we have to hold on to is that we are blessed to have that loved one in our lives for as long as we did. Now we have the responsibility to live our lives in honor of the special ones that have gone before us.
You are unique in this forum in that you communicate first hand to us caregivers what our loved ones are experiencing, but may not have the voice to say. Thank you for staying with us.
Thank you Bobby for those kind words. Since my dx six years ago I have lost two dear friends and five family members including my wife Trish and her oldest son. It took me two years to come to that small place known as acceptance which prepared me for my own death. Never did I ever imagine that I would survive them all. It doesn't seem right, but life doesn't have favourites.
Your post has moved me to tears - words just seem so empty when life has dealt such a duff hand. I don't have a faith so I don't know whether we will meet our loved ones again. However, it seems that you had the most beautiful lady in this life, many don't get that, and my wish for you is that those memories will sustain you. I had the best, I was so lucky, and my memories keep me going.
There are no adequate words that can express my thoughts and feelings for you at this difficult time-except- May peace come to you and your family. Your loss of Trish is beyond human understanding. My husband has PSP and while I am healthy and strong-his biggest fear is that something will happen to me. I am reading your books and its hard to grasp that you have so much loss to cope with now. So sorry-
Thank you for your kind words. I was always worried how Trish and Matthew would manage when my time came, never did I ever imagine she would precede me.
I can't imagine how lost you must feel. You've been an inspiration to those of us who depend on this site. I wish I had the words to say. You've certainly been handed a heavy load and have born it so admirably. So sorry.
Thank you. It has been a challenging week as you might imagine. Jeff's post today helps put things into perspective. The weeks and months to come will be difficult - not just for me, but for everyone. Let's all remember that not every day will be good, but there will be good in every day.
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