Heaven knocked on our door - she answered - PSP Association

PSP Association
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Heaven knocked on our door - she answered

daddyt
daddyt

I remember when I first joined this forum as patient a few years years ago, I distinctly remember some of the veterans warning me that I might become unnerved about some the posts I might read. I gave those concerned my assurances that I was pretty thick skinned and my goal was to learn how to be a better patient as my disease progressed. Life has a funny way of happening as you go about making plans and you never know what it has in store for you. As someone who is cared for 3 hrs. a day by a couple of wonderful PSWs, I never imagined to find myself thrust into the role as caregiver and the cared for. I've experienced the same situations many of you have shared here... and then some. I did this out of the deepest love and respect for my wife Trish - there was no greater honour. I learned more about patience and humility in the past three months than in any other time. But heaven could see she was tired, it knocked on our door and she answered. Peace... perfect peace my princess until such time we will continue our fairy tale.

Tim x

76 Replies
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Oh Tim, no words can help but you are in my thoughts and prayers. May you know His special peace at this difficult time knowing Trish is no longer tired, is in a better place and when the time comes you will be together again. Oh what a reunion that will be.

Sending you a big hug.

❤️ XxxX

daddyt
daddyt
in reply to NannaB

Thank you

Hi Tim

I've replied to you elsewhere.

I'm still bereft of words, bu would wish you all that you need at this most horrible of times.

Warmly and hugs

Kevin

daddyt
daddyt
in reply to Kevin_1

Thank you Kevin

Dear Tim. There are no words for so great a loss. I'm deeply sorry. Love, Sarah

daddyt
daddyt
in reply to easterncedar

Thank you Sarah

Beautiful words...............XXX

daddyt
daddyt
in reply to Bargiepat

Thank you Pat. I pray you're keep well, all things considered.

Tim

Hi Tim, this is so very sad to hear, I was so shocked to read your post, sending hugs your way to you and your family, I felt like I new Trish, through your books, she will be very much missed, I am so very sorry for your loss Julie xx

daddyt
daddyt
in reply to BamBam28

Thank you. She was every bit the woman I described in my books... and then some.

Dearest Tim. Words cannot express my thoughts at your loss. Through your books I have come to know Trish too and she sounded such an amazing person. She will be so missed by all those that she came into contact with. My prayers are with you to support you and Matt until you can be with her again. Angels to care for you. God bless you. AliBee

daddyt
daddyt
in reply to AliBee1

She was a truly amazing and selfless woman. My heart is broken.

Tim

Dear Tim, I had no idea that your lovely wife was ill. I am so sorry, may she rest peace.

Sending a very large hug and so much love to you.

Lots of love

Anne

daddyt
daddyt
in reply to Heady

Thank you Anne

Hugs and prayers for you, I’m so very sorry,

Karen

daddyt
daddyt
in reply to Khartt

Thank you Karen.

Dearest Tim,

In the middle of all this chaos and uncertainty you have to go through such terrible pain. I am so sorry. Sending you all my love and respect.

Ana

daddyt
daddyt
in reply to RunPeace

Thank you Ana

Tim, I am so sorry. God never asks us what type of burden we would like to bear in life, he just knows who he can count on. Trish is finally at peace and you should be as well knowing you did your very best at being a wonderful, loving husband.

Rest and cherish the memories that you made together. If the picture is any indication, you must have had a lot of them.

Hugs, Alice

Thank you Alice

Oh no not Trish! I’m so sorry

Hugs.

Sue

daddyt
daddyt
in reply to Norsksue

Heartbroken

Dear Tim, I'm so sorry for your loss. Keeping you in prayer.

Lots of love, Nanny857xx

daddyt
daddyt
in reply to Nanny857

Thank you

Dear Tim

So very sorry to hear this sad news. Words are just a drop in the ocean at such difficult times, but know you are in my thoughts as I know you will be in so many peoples on this site and elsewhere.

Sending love and hugs

Tippy

daddyt
daddyt
in reply to Tippyleaf

Thank You Tippy.

Tim, my heart hurts for you. I am so very sorry to hear this sad news. I can only offer my prayers that you can stay strong and somehow carry on without your loving wife being physically by your side. I’m sure her spirit will be watching over you. Love never goes away...it just changes form. Hugs to you.

daddyt
daddyt
in reply to Cinnylou

Thank you for that.

I am so so sorry.

Trish was not only a beautiful soul, but from the photo I see she was also physically beautiful. You made a VERY handsome couple.

The memories you two shared will cause you to cry, but they will also comfort you.

Sending prayers and good wishes

Margarita, Los Angeles, CA, USA

daddyt
daddyt
in reply to enjoysalud

Thank you Margarita.

Oh dear, I’m so sorry to hear of your loss Tim (nor did I know fully your situation - I’m very sorry to say).

daddyt
daddyt
in reply to Ettavb

Thank you.

My heart breaks for you. This disease is hard enough to bear with a loved one. Can’t imagine what you are going through. Many hugs from a fellow sufferer.Jayne x

daddyt
daddyt
in reply to Aprilfool20

Thank you - double the troubles.

Dear Tim

I am so so sorry to read this, I too feel as though I know you both so well from reading your books ( I am still reading the second one) My heart is truly broken for you, please take good care of yourself and your family at this difficult time. There is a lot on here about grief so keep talking to us as it’s another difficult journey that you will be making and it’s exhausting so please get plenty of rest and accept all the help that you are offered. The photo is beautiful. Sending lots of virtual hugs

Live Sarahxxx

daddyt
daddyt
in reply to Hiking13

Thank you Sarah.

So sorry to hear this Tim 😢

daddyt
daddyt
in reply to ep12345

Thank you.

Lovely words my heart goes out to you. Rob

daddyt
daddyt
in reply to Willow_rob

Thank you Rob.

I am so sorry to hear this Tim. You have been so supportive and encouraging to many on this forum whilst you go through the horrible journey of this disease, and now you have the role reversed. I can't find the words but know you are in all our thoughts and prayers. God Bless you Tim and God Bless Trish. May she Rest In Peace. 💔💔😪😪🙏🙏

daddyt
daddyt
in reply to georgeg25

Thank you.

There are no words.

I truly can't imagine how you are feeling.

Sending you much love & support

Thank you.

Dear Tim,

My deepest condolences... keeping you and your family in our prayers..

Warmest,

Zsha

daddyt
daddyt
in reply to Zsha

Thank you Zsha.

So sorry for your loss Tim. big hugs to you.

Dawn, xx

daddyt
daddyt
in reply to patch33

Thank you Dawn.

Oh no Tim, I'm so sorry that you have lost the love of your life, particularly difficult given your own situation. Your post displays what a special lady she was and your faith will help to see you through. I don't have that faith but it must be a huge comfort at such a difficult time

Sending love

Kate xxx

daddyt
daddyt
in reply to Katiebow

Thank you Kate - and it will.

Tim,

I have found it increasingly more difficult to read and respond to posts here after loosing my wife to this terrible disease two years ago, but your post caught my eye and my heart. I wish I had words of comfort, but my well is dry. However, my thoughts and prayers go out to you. Prayers of comfort, strength, and healing.

No one told us that when we are married that one of us would out live the other. I was convinced that my wife would out live me. All we have to hold on to is that we are blessed to have that loved one in our lives for as long as we did. Now we have the responsibility to live our lives in honor of the special ones that have gone before us.

You are unique in this forum in that you communicate first hand to us caregivers what our loved ones are experiencing, but may not have the voice to say. Thank you for staying with us.

Bobby

daddyt
daddyt
in reply to Beads0122

Thank you Bobby for those kind words. Since my dx six years ago I have lost two dear friends and five family members including my wife Trish and her oldest son. It took me two years to come to that small place known as acceptance which prepared me for my own death. Never did I ever imagine that I would survive them all. It doesn't seem right, but life doesn't have favourites.

Tim

So sorry, Tim

daddyt
daddyt
in reply to Aurala

Thank you.

Dear DaddyT

Your post has moved me to tears - words just seem so empty when life has dealt such a duff hand. I don't have a faith so I don't know whether we will meet our loved ones again. However, it seems that you had the most beautiful lady in this life, many don't get that, and my wish for you is that those memories will sustain you. I had the best, I was so lucky, and my memories keep me going.

With warmest regards,

HilsandR

daddyt
daddyt
in reply to HilsandR

Thank you. I too, had the best. My faith and my cherished memories will sustain me. For now, I will keep on, keeping on.

There are no adequate words that can express my thoughts and feelings for you at this difficult time-except- May peace come to you and your family. Your loss of Trish is beyond human understanding. My husband has PSP and while I am healthy and strong-his biggest fear is that something will happen to me. I am reading your books and its hard to grasp that you have so much loss to cope with now. So sorry-

Thank you for your kind words. I was always worried how Trish and Matthew would manage when my time came, never did I ever imagine she would precede me.

Tim, I am so sorry. Your farewell to Trish was touching. Godspeed.

Marilyn

Thank you.

I can't imagine how lost you must feel. You've been an inspiration to those of us who depend on this site. I wish I had the words to say. You've certainly been handed a heavy load and have born it so admirably. So sorry.

Pat

daddyt
daddyt
in reply to racinlady

Thank you Pat.

Dear Tim,

I am so sorry about the loss of your lovely wife. My heart goes out to you.

I haven't read your books but am going on Amazon right now to order. I want to hear your story.

With prayers and hugs,

Joy

daddyt
daddyt
in reply to journeyofjoy

Thank you Joy. You'll come to know Trish through my journey, she is all that I describe... and more.

journeyofjoy
journeyofjoy
in reply to daddyt

Just ordered the first book and look forward to reading it.

daddyt
daddyt
in reply to journeyofjoy

Please consider leaving a review when you're finished.

Tim x

So sorry for your loss xx

daddyt
daddyt
in reply to Dickenson2

Thank you.

Tim

I am so sorry, you are such an inspiration to us on this site, I just can't imagine how you must be feeling. Wishing you and your family strength.

Alison xxx

daddyt
daddyt
in reply to AJK2001

Thank you Alison.

Oh Tim! How very very hard, unfair,- tragic!

I was away from the site a few days and was shocked to see this. 😪💔

Are you going to be ok?? There's just so much going on right now... Will you have enough support to get through?

Huge hugs for you at this devastating time ❤️❤️❤️

Anne G

daddyt
daddyt
in reply to raincitygirl

Thank you Anne. I will get through this.

Tim, so sorry for your loss.

Sending love to you and your family.

Sarah xx

Thank you Sarah.

Hi Tim, You have been in my thoughts and since Its been a few days I just wanted to check in and see how you are doing?

Thank you. It has been a challenging week as you might imagine. Jeff's post today helps put things into perspective. The weeks and months to come will be difficult - not just for me, but for everyone. Let's all remember that not every day will be good, but there will be good in every day.

Tim x

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