JOHN: JUST DIAGNOSED IN SEPTEMBER, 2015. AGE... - PSP Association

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JOHN

Jotro profile image
9 Replies

JUST DIAGNOSED IN SEPTEMBER, 2015. AGE IS 70. FIRST SYMPTOMS THREE YEARS AGO. FIGHTING BACK WITH A VENGEANCE. WENT FROM BED TO WHEEL CHAIR TO WALKER TO FEET. BEST FRIENDS ARE WIFE AND CHILDREN. LIVE IN USA. "

"NEVER, NEVER, NEVER GIVE UP."------WINSTON CHURCHILL

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Jotro profile image
Jotro
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9 Replies
abirke profile image
abirke

Let me be the first to 'welcome' you. I'd rather welcome you to church or a great steak house but here we are. Was the diagnosis PSP? My husband was diagnosed March of 2013...(wow only it's been 3 years ?) and he was showing signs two or three years prior. We too live in the US.

AVB

Nay , in all these things we are more than conquerors through that loved us

Romans 8:37

Christine47 profile image
Christine47 in reply toabirke

Wow, we are on the same path, although my husband started his falls in 2008 or 9 . We are so fortunate to have a UCLA neurologist who is supportive of all I am trying to slow down the progression. I have to believe the answer is out there.

Christine47

abirke profile image
abirke in reply toabirke

EDIT:

Nay , in all these things we are more than conquerors through Him who loved us. Romans 8:37

Jotro profile image
Jotro

Yes, PSP is definite. But, I am fighting it with all my heart and I am better than in 2015. Attitude counts. He must think like Churchill. That is the key in my case.

abirke profile image
abirke in reply toJotro

Good for you, John(?).

Fight the good fight!

Jotro profile image
Jotro

I sure hope so. It is an insidious illness.

Lathom profile image
Lathom

Your in the same boat as my sister john , who I look after she is 70 and was diagnosed 12 months ago with PSP, developed symptoms around 3 years ago. We are with her all the way.in the u.k. england

Jotro profile image
Jotro in reply toLathom

Three years for me as well. I thought I was a tough guy for making it for so long and now that I find that two to three years is typical for a definitive diagnosis. Well, so much for my ego trip. I stand humbled.

USA--sick as your sister in the UK.

Jotro profile image
Jotro

This is the first time that I have heard of a woman having PSP. Good luck with your kind work.

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