JOHN

[Jotro]

JUST DIAGNOSED IN SEPTEMBER, 2015. AGE IS 70. FIRST SYMPTOMS THREE YEARS AGO. FIGHTING BACK WITH A VENGEANCE. WENT FROM BED TO WHEEL CHAIR TO WALKER TO FEET. BEST FRIENDS ARE WIFE AND CHILDREN. LIVE IN USA. "

"NEVER, NEVER, NEVER GIVE UP."------WINSTON CHURCHILL

[abirke]

Let me be the first to 'welcome' you. I'd rather welcome you to church or a great steak house but here we are. Was the diagnosis PSP? My husband was diagnosed March of 2013...(wow only it's been 3 years ?) and he was showing signs two or three years prior. We too live in the US.

AVB

Nay , in all these things we are more than conquerors through that loved us

Romans 8:37

[Christine47 in reply to abirke]

Wow, we are on the same path, although my husband started his falls in 2008 or 9 . We are so fortunate to have a UCLA neurologist who is supportive of all I am trying to slow down the progression. I have to believe the answer is out there.

Christine47

[abirke in reply to abirke]

EDIT:

Nay , in all these things we are more than conquerors through Him who loved us. Romans 8:37

[Jotro]

Yes, PSP is definite. But, I am fighting it with all my heart and I am better than in 2015. Attitude counts. He must think like Churchill. That is the key in my case.

[abirke in reply to Jotro]

Good for you, John(?).

Fight the good fight!

[Jotro]

I sure hope so. It is an insidious illness.

[Lathom]

Your in the same boat as my sister john , who I look after she is 70 and was diagnosed 12 months ago with PSP, developed symptoms around 3 years ago. We are with her all the way.in the u.k. england

[Jotro in reply to Lathom]

Three years for me as well. I thought I was a tough guy for making it for so long and now that I find that two to three years is typical for a definitive diagnosis. Well, so much for my ego trip. I stand humbled.

USA--sick as your sister in the UK.

[Jotro]

This is the first time that I have heard of a woman having PSP. Good luck with your kind work.