My mother is suffering from PSP disease for last 7 years, first diagnosed in mid 2012 by Dr. Sunil Pradhan. Probably she is in her last stage now. PEG tube is referred for last many months but she decided to not opt for it. Her diet was mostly crushed food of honey consistency initially and for last 5 months, it's reduced to mostly milk, ensure and medicines mixed with honey.
Recently, it's deteriorated so bad that she can't take even water from mouth. She had bad cough and was admitted in hospital to recover back. Since then, she is on ng tube, been around two months.
These days, she is gettings uncomfort with tube, especially at night. She feels the urge to remove it and we yet couldn't figure out why? She removed it multiple times in last week itself. We tried gentle tying of hands but didn't work either. Ng-tube was adviced to keep for 3 weeks before replacing. What could be the possible reason for her removing it? And what steps can be taken to make things little more stable?
