Larry’s cousin Diane went to the hospice today to see Larry. A nurse stopped her before she left to say Larry was failing. He may have a few weeks left. I knew this was coming but it seems to be here. I am not sure he will even last a few weeks. He was in the place to give me a break. I am going over in the morning with Diane to see him. To see if bringing him home is possible. How to go about it.
I expect I will be crying a lot tonight.
Oh that is heartbreaking. I don’t often comment on this site (I have a dear friend with PSP but am by no means her primary caregiver) but I follow your posts quite regularly and have been touched by your devotion. I also appreciate your black humor — in my experience the only thing that makes life bearable at times. All my best to you and Larry.
I am so sorry to hear this, try and stay strong for both of you and we are all here for you. I will be thinking of you both
Love Sarahxxx
If he is degrading in health fast the doctors at respite may be reluctant to send him home. You may have to stand your ground and let them know your wishes and that you have the means to care for him in this state.
Good Luck,
Ron
I'm in the UK
Here, when Chris was in hospital, didn't want a peg and judged to be in the last stages, they sent him home with a palliative care team on call from the local hospice. They were wonderful. I had everything we needed for him to stay home. I hope you can have the same.
Big hug for you Jeff from Jean xxx
I am so so sorry Jeff.
Because you are in the states, I think Hospice will allow him to come home and also provide the support. My son was under the ACA....Kaiser Permanente.....they provided support.
Sending prayers that what is "best" for you and him is what is provided.
Staying, hanging around, on this site has helped me with managing my grief and accepting with gratefulness that my son is no longer suffering. Missing my son's company, and his humor, and his compassion never has gone away.
Los Angeles, CA, USA
Jeff thinking about you at this sad time, hopefully you can bring him home, cate can be put in place so you both can enjoy each other’s company, without any stress. Sending you a big hug. We are always there for you xxxxx
Jeff,
I’m so sorry to hear about Larry’s decline. As others have mentioned I do hope that you can bring him home. Crying is okay. You know that you have done everything that you can and you’re the only person who truly understands Larry’s needs. Be with him now but let others help you. Please keep checking in with us so that we know you’re okay.
Hang in there!
Love from I SewBears
I'm so sorry to hear that Larry's not doing well. You should be able to bring him home with hospice's help. Have a good cry if it helps.
Hugs,
Pat
Oh Jeff, I am sorry to hear this. I follow your posts so it didn't seem to me like this was coming so soon. I'm so glad you have had this little break before the end. I agree with the others - if you want to bring him home, in the U.S., we make that decision for ourselves. Do what is best for you. No matter where Larry is, you will be there to love him and see that he is well cared for.
My heart goes out to you.
Sorry to hear of Larry's decline. May your courage and love see you both through at this difficult time.
Love and prayers, Juliet.
Oh Jeff I'm so sorry for you. I too have been touched by your love and devotion for Larry. You are in my thoughts and prayers xxx
So sorry to hear Larry isn't so good.
Stay strong.
Sending hugs to you both.
Sue x
I am so sorry Jeff, lets hope you can get him home with a good care package that allows you to be his partner not just his carer.
Your posts over the last 2 years have made me laugh & cry but most importantly have made me realise I am not alone in coping with this terrible condition and given me strength and resilience to face life & support Mum. I hope we can offer you some of the same now.
Hugs to you both
Alison
I am so sorry to hear this. I have been following your posts and your love for Larry is clear for all to see. Hoping you can get him home so that you can be together to the end. Offering prayers for you both. 🙏🙏🙏🙏🙏
Jeff
I am so sorry to hear that. I don’t think you saw this coming. My heart goes out to you. We are behind you in the progression but I am starting to see the acceleration in my spouse, 2.5 years from psp dx now. I am grappling with my denial and starting to face the reality of what is coming. It is beyond depressing. I can only imagine what you must be going through. You are an excellent career and one of the people I look to for guidance. Larry is lucky to have you by his side. Sending love and prayers for the tough road ahead.
Jeff, I am so sorry to hear of Larry's decline. You have that cry and another one whenever you need to.
We all know the day is coming but the reality of it is all too frightening and heartbreaking.
We are all here for you. Much love and strength your way.
Oh no so sorry to hear this Jeff i just thought you were going to have a break didn’t realise he was so bad I’m sure you can Bring him home
If you want try and get some help at home though hope you’re ok you keep us all going on this site bless you both x
Hi Jeff,
sending you lots of hugs and some strength to do whatever you feel is best for both of you !
Thinking of you.
Dawn, xx
It’s such a difficult time on all levels. Please know we are here for you as you continue this journey. He is lucky to have you by his side. Take of yourself.
Cuttercat
Dear Jeff
Thinking of you and Larry at this difficult time. Keep strong and keep on keeping on, you're doing a fantastic job.
Hugs
Anne
Thinking about you and Larry on this horrendous roller coaster ride called psp.
Hugs
Dee in BC
Dear Jeff
I can only echo what everyone else has said. We are here to support you and be with you.
Lots of love and warm hugs to you both
Caroline
I am so sorry to hear Larry is nearing the end. I’m sure you are torn between wanting his suffering to end...but then having to face his being gone. I will pray for strength for you to face what lies ahead.
And a thank you for your posts. You’ve always given helpful tips, and I love that you are a wonderful story teller. I appreciate that you can put a humorous spin on some of the “crap” that we’ve all lived through.
Sending hugs...
Cindy
I can only say , , I'm thinking about you , , I hope you get Larry home so you can be together at this private time. ..Brenda xxx
Hi Jeff, So sorry to hear this news. I pray you will get the care needed to bring him home and be with him, loving him as his partner and leaving the care to others. Know that you have done your best for him and been a strength to us as well.
Lots of love, Nanny857xx
So sorry Jeff, thoughts are with you both. Sending hugs
Dear Jeff
Thinking of you both and hope you can get all of the support you need
Love and hugs
Tippy xxxx
Hugs to you Jeff; As Laurel says, I appreciate your black humour amidst the devotion, immensely!
I think about the only good thing to come out of this disease was I more or less knew the end was near-ish. (I was still shocked, but my point is) I was able to concentrate on love more than frustration - (often- not always!) and maybe didn't have that wracking guilt that unfairly plagues too many. It's a small condolence, but every bit counts right now.
❤️❤️❤️
Anne G.
Dear Jeff from time to time I return to this site and follow your stories and your special humor
Stay strong, is the life and this particular time. After crying enough, with a cup of coffe, tray to write your fillings. People will be here to support You
Big hugs
Elena
Such a difficult Tim for you and Larry, I sincerely hope you manage to get everything in place for him to come home. My heart goes out to you.
Love Kate xxx
Is this a decline?
Freedom
