Today I have decided I have done all I can do.
My husband is in a loving nursing home.
His PSP is slow... With lots of ups and downs.
I have decided to allow his care to be in the loving hands of the nurses, doctors and aides.
I am choosing to restart living my life.
I am sure this decision was made after much thought and reflection. Be at peace with this decision. You are still his advocate for his medical and daily needs just not performing the daily caregiving. Treat yourself to a day of doing absolutely nothing, you deserve it.
Ron
I went back and read your first post from 2 years ago. I’m proud of you for coming to the decision that you have. I have said out loud to friends on more than one occasion that my life is on hold too. I totally understand where you’re coming from.
Sending huge hugs from I SewBears
XOXO
I just went back and read my own posts from two years ago. Two years!
I can hardly remember him without PSP.
Thank you for taking time to listen and support without judgement.
No judgment here. It sound like you made the right decision for you.
I had to make the same decision 2 1/2 yrs ago. It was the hardest decision of my life. I eventually came to realize that we were both better off and you will be too. My husband was getting better care than I could provide and I got a little of my self back. It took me 3 months to re-establish a normal sleep pattern.
Hugs,
Pat
I still hear him calling me at night.
I have not read any thing yet but I commend you...
You are as important as your love one and all the
Prays from others do not allow you to live life.
Do not lose your self,this disease is as horrible to the caregivers as the person that has been diagnosed with it. speaking from a couples point of view.
Dee in BC
Thank you. Hearing from you, who is dealing with the illness first hand is healing for me.
Well said you speak for all of us
I have read the information and I still commend you,all the Prays from others will not make it better,because this disease cause them to have lack of empathy they do not understand what you are going through.
I wish the best for you. Each of us must make decisions in our own time and way.
Peace.
My mum had to eventually place my dad in a nursing home which became his home for over 3 years. That first year it was a huge emotional rollercoaster ride. For many months my dad would ask my mum to order him a taxi and to take him home as he didn’t want to stay at the nursing home any longer. Eventually we had to tell him he couldn’t come home. You could see a big change in my mum she began to live her life and make new friends. If my mum hadn’t have placed my dad in a home then I think she would have become exhausted and poorly herself.
It’s time to look after you now.
Thank you. I'm sure this will be a new roller coaster.
You have done the right thing, I know what a desperately difficult decision it is because I had to do the same thing. It was the saddest day of my life when I had to take P into the home, up until the day he died.
Ultimately you are deciding what is best for your loved one and there definitely comes a point where the hardest choice is often the best option.
x
I think you are very brave to have taken this decision . I know exactly where it comes from . We can feel our own last years are completely taken over by another’s needs and it is hard . I hope you find the you that is you again
I am hopeful there is some me left.
Thank God I have a wonderful counselor and a friend who is cheering me on.
I am in exactly the same position and I am now starting to do a few things but still try to go in everyday to give him his lunch. Today I had to take him to the dentist and everyone was wonderful getting him in and out of the car. I then brought him home and my wonderful neighbours managed to get him in the house the first time this year. He was so pleased. Xx
My wife Lana ,just passed Thursday night came quicker than expected . Could not open mouth but half inch She's been on ensure about ten days . This has been the worst four years of my life!!! But would not trade for anything ! She's been on hospice care for 3 months .Miss her so much!Bad disease !!Prayers
I'm so sorry to hear that. You have been her stalwart support.
Big hug from Jean xxx
You're doing the right thing!
What is happening to me?
It's me MIRIAM again 
Me again... progression with mum
