Hey...PSP isn't so bad.: Things are going... - PSP Association

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Hey...PSP isn't so bad.

journeyofjoy profile image
7 Replies

Things are going pretty well around here. Sandy seems to be doing okay. There haven't been any major changes for probably four months, only a few minor ones, more weakness, sleeping a bit more, left hand shakes like mad if he tries to pick anything up with it, probably a few other things. Anyway, just want to throw out a positive post. When things are stable for a while, it all seems just great! As long as you don't look back on where you used to be, you can fool yourself into thinking it's all good.

Also, we haven't had home health care for a while which has been like a mini vacation. They are heading our way soon because it's getting very difficult for my husband to get out of bed and onto the Sara Stedy. We need an OT to help out.

We had a big family party yesterday (not at our house, thank goodness - but at a banquet room in a restaurant). Lots of family - baby shower for our upcoming grandbaby as well as celebrating Sandy's 73rd birthday. It was wonderful to have the family together and he had a good time. He was worn out, but he enjoyed it. We really need to build more of these gatherings into our life while he can still enjoy them.

He's gone to bed and I can hear him in there doing the loud, continuous throat clearing.

Goodnight all.

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journeyofjoy profile image
journeyofjoy
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7 Replies
kenh1 profile image
kenh1

Thank you Joy. I love your positivity it is a lesson to us all.

Ken.

Dadshelper profile image
Dadshelper

Sounds like the baby shower was a good time for all. Keep active and do things you both like for as long as possible.

Ron

It is nice to have a momentary pause. They don’t last long. Enjoy them when they happen.

PA3MA profile image
PA3MA

Thank you! I agree that seeing the positive helps make things a bit easier... Like you, I feel like my Dad is stable for long periods of time. He is going on 4 years living with PSP. My Mom refuses any help and has been able to care for him 24/7 at home since he's been diagnosed. We take it a day at a time, but I feel it's like you said, "As long as you don't look back on where you used to be, you can fool yourself into thinking it's all good". Thanks for posting! Hope everyone can see some positive in their situations as well :)

doglington profile image
doglington in reply toPA3MA

That's true. Similarly - Now I look back I wonder how I managed ! We just do!

X

Splendid!

A hug.

Luis

cameoboy11 profile image
cameoboy11

Great !! Thanks.x

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