Thankyou All

[demlac]

This sight is amazing!!! I don’t post too much but I read what is written on here and usually have tears in my eyes when I do! The only place where people are going through the same mess! Thankyou somehow I don’t feel so alone there is nowhere in Australia where I can meet with other people to have a chat about this CBD nightmare. Thankyou all xx

[doglington]

I remember the relief I felt when I realised I was not battling alone.

Its still a support 1 1/2 years after he has died !!!

xxx

[honjen43]

It can get lonely at the bottom of the world!

Just like you, demlac , I found I was no longer alone and tearing my hair out at useless medics who knew nothing about CBD. And could not explain my love's rapid decline!

Welcome, welcome!

Hugs

Jen xxx

NZ!

[Tippyleaf]

Dear Demlac

I couldn’t agree more . The only positive thing in PSP are the wonderful friendships in Person or online . It is a lonely old journey and this site is invaluable.

Sending lots of love across the seas Tippy xxx

[DenB]

I also think this site is amazing. I have been helped in so many ways by being in contact with the wonderful people on here and I hope that I have been of help too. MY husband also has CBD.

You take care now.

D X

[Katiebow]

This site is a lifesaver and offers advise, support and love from those who are travelling or have travelled this treacherous road.

Much love

Kate xxx

[Kevin_1]

Hi demlac,

Yes, this site gave me such an education and so much support too.

Waving to you

Kevin

[lilmisschris]

I too am thankful for this blog. My husband is 61 years old and has PSP. He was originally diagnosed with Parkinson's in 2012 but later other symptoms changed the diagnosis. I have the same feelings of the caretakers of the other people who write on this blog. It has been a great resource for me. Thank you for sharing your storites

[Javan]

Agree with you but is your screen upside down to read northern hemisphere comments?

[demlac in reply to Javan]

Ha ha no Javan, its the same as yours!!! just have to doge all the kangaroos and watch out for vicious koalas if im outside texting!!!

[Beads0122]

Demlac,

I’m glad you are here. Since this disease is so rare, I dont think you will find many places where you can talk with others about coping with this disease. I was like you initially mainly reading posts and being amazed at the same problems and feelings I was having. This site was such a help to me, that I want to give back now that my wife has passed.

Cherish the times you have with your loved one. Even the difficult times. I even miss the difficult times, but would not want her to suffer through that.

Bobby

[racinlady]

I agree. This site has been a lifesaver for me while I was dealing with PSP in a rural area of the U. S. where there was almost no support and almost no one who had ever heard of PSP, including most of the local doctors. I just wish I had learned about it earlier. My husband is refusing food now so I fear the end is near. It's been a long and lonely journey. It has really helped knowing that others are facing the same challenges.

Hugs to you,

Pat

[ashleyrose]

Hi, I read one of your posts about your husband having CBD and you having children in their twenties and I just wanted to share my side from someone who is in their 20s that lost their mother to this disease. It is hard as a young adult to lose a parent, and this disease is something that is exceptionally hard to watch. I wish you and your family nothing but the best!

Xo.

[demlac in reply to ashleyrose]

Aww Thankyou sweetheart and yes it is so hard for them to watch there big strong dad go through this, our daughter seems stronger although I wonder if she is in a bit of denial and it will only truly hit her once he is gone:-(. our son struggles so much he’s really trying to get through this as best he can, you are never prepared to lose a parent I watched my dad die I was 44 at the time and it devestated me. Thankyou for your words xxx