Bob is gone. Left us on Friday. What a battle he fought!! I can remember thinking I'd never get to this point... to the point of posting this. I joined this group about 5 1/2 yrs ago, after finally getting a diagnosis. He was a good man but needed to get out of that body... if that's how it works. Life is not always fair, never know what we're going to be dealt. We all have an expiration date, 62 years old just seems too soon. Love and strength to you all on your journey. It's not an easy one.
Joan
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laroux
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Oh Joan, I am so sorry to read this. 62 is so very young. You are right...life is not always fair! So sad. As you said, he needed to get out of his body. That way he can be at peace. They say we will find peace with the hands we were dealt as well.
I am so sorry to hear of your loss - even though you and Bob fought long and hard and deserved peace at last. Your heart must hurt so badly.
Your loss is extra painful because of the early onset and young age of your Bob. He, like all our loved ones, deserved so much better. I hope that he is now flying free, a spirit in harmony with the universe, without pain, without weakness or limits, full of light and peace
You and I can now be newbies in the grief group and compare notes.
So true Anne G. 4 and a half weeks since I lost Leon, somedays it seems an eternity, others like yesterday. Still finding it difficult with the time I now have on my hands. 8 plus years of constantly caring for someone is difficult to deal with the time now. Cheers Marg H
This site has been so so good for me. I have filled in forms to become a volunteer with Borella House where Leon spent his last 4 months, police check etc etc, finally came through and got in touch, but can't give me VOLUNTEER work for a month ???!!! Thought helping would help me wile away the time and do something helpful. Ughhhhh guess it will get better with time Hugs
Well, if nothing else, use this time to lavish attention on your health...(at least that's my advice to myself..!) Spas, walking, pools, the best salads (buy them) vitamins, sleep, sun.....I got a schedule for the rec centre drop in exercise classes today. Didnt go..but I got the schedule!
Well... I just completely emptied, dug and pulled out my flower bed, hauled in mulch and re- did the whole thing...things to keep the mind, body and soul busy. Ithink for the next while everything we do will be part of the healing process.
I think you're right Joan. But you are way more energetic than I am - I'm just THINKING about all the physical stuff I should do to become healthier again and help me be tired at night
Way to go, lady. But as my Garth (who was born in Sask but raised in Alberta) always said: "Albertans get 'er done".
Marg, I already feel the length of the days..After years of constant focus on our loved ones, that very sudden cessation of duty is staggering! And even though it was hard and we hurt for what they suffered, the act of caring for them was "Life"!! ...and to suddenly have that ripped away: wow...... Cutter is right about posting, though
Yes posting and reading here is an amazing help, "Life" as such has stopped, people kept saying you have to take time out (prior to Leon passing) you have to have a LIFE well Leon was my life. xxoo
Thinking of you too. As I have said on numerous occassions, this site is so so helpful. Just knowing others are out there going through the same thing, means so much. Hugs to you xxoo
Dear Joan, I can't believe that another one of this family has left this world, so sorry but as usual the message is that he is free of the suffering and indignities of these terrible diseases. I thought Ben was young at 66, 62 is far too young. No matter how prepared you think you are, the end is still very painful and sad for those of us left to cope on our own and the different emotions seem endless and sometimes conflicting. Take care of yourself as you start the grieving process, it's a bit of a rollercoaster that needs time to get through.
Dear Joan, I am so sorry to hear that Bob has passed away. may he rest in peace, finally free from this evil disease.
Now is time to use those hard learnt caring skills on yourself. Take your time, nothing has to be done today. There is only one way to grieve and that is YOUR way!
My thoughts and prayers are with you Joan. Bob has gone but you have your memories of him and hopefully, gradually, the memories of the last few traumatic years will fade and you will see Bob as how he was prior to PSP. May you also feel peace in the next few difficult weeks and one day come to see there can be a good life after PSP.
Sorry to hear Bob passing, you are right in saying life can be so unfair,and psp can be tough on you both,my wife Kathy is only 63 and in her 4th year.you know it's love which drives us to looking after our partners, take care , gather your strength,love will surround you ,xx Peter and Kathy
Joan, if it works for you, please keep in touch. Because we are in the same spot at the same time, I believe we will have much in common. We can compare notes Message me anytime - I'm here for you. Thinking of you. XXXX
Oh how I feel for you. 62 is so so young. However, it is an incidious illness, and I feel that those affected are not living life. The mind is so so good but the body gives up. Hugs and thoughts are with you. Marg H Howlong N.S.W. Australia
I am so sorry. I looked back at your posts - that was a long long drawn out journey. I don't know if I will ever have the strength to cope with all that. You are a star.
Joan, I am so sorry to learn about Bob's passing. My John will be 64 next week and wonder how many birthdays remain. So many souls set free lately, so many new angels up in heaven.
So sad! I'm with you in spirit. I'm left with a memory of a young man in an old man's body. Charles, like Bob, fought until the end. Five years for us as well. I'd start all over again if I could, but the struggle was too much.
I'm so sorry and am with you as we start this next horrible journey.
I am so sorry for your loss. Such a horrible and devastating disease. May he rest in peace. Wishing you and your family comfort during this time.
Connie
Joan,was re reading your post and you and your Bob have been through He** and back.
He sounded like a very determined man and went on his time and not a minute before,I have one of those guys.You did your best and now it's your time to be released from this horrible disease as well
Thinking of you at this sad time. Bob is now free from this evil disease. Now you have to look after yourself just as you looked after Bob so lovingly. Sending love, Nanny857xx
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Advice please - CBD
New to PSP and to this site-not so new to PSP symptoms
