My dad has been diagnosed with PSP about 2 years ago. He has sadly declined very rapidly and has had numerous falls over last 2 years. He is now wheelchair bound mostly but latest accident has left him with very little mobility which has meant its now just too much for my mum to do this by herself. His cognitive ability is declining to which means he can’t assess his own risks and tries to stand which means he falls a lot. It’s a very painful disease to watch.
Does anyone have advice on how to stay ahead of what’s needed? We always seem to be 5 steps behind what he requires and are now looking into carers (Kent based). Any advice on experiences is much appreciated or where we should first turn to for help. Social services have just been in contact but I don’t know what we can get from them, we’ve had 2 OTs (nhs and social services) physio therapists (but no appt yet). It seems to be a mind field!