Just been reading post for a while now but not put anything on . I’ve had 4 lots of antibiotics and steroids in last 6 weeks so not been too clever but unfortunately Archie has taken a big dip in this fab illness .we now have 24 hr care to look after him as I cannot do it and today hospice consultant came to see us and now they are stopping 2 of his daytime feeds and 5 of his meds .he won’t be treated if an infection start as it won’t do anything for him.anything that has to be done will be done at home as not going back into stupid hospital . I’ve always known that this time would come but when the time has come .im sick of bubbling so now I will be strong again to get through the weeks to a few months at most that has been given to him
Sorry to put this on but your the only people that knows all about and understand it all
Sending love and kisses to all
Take care
Sue xx
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Suebatt
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Dear Sue, I know this is a terrible time. But treasure this precious time you have left. Be Archie's wife again, not his carer. Hold his hand as much as you can, tell him you love him. Let the Carer do all the mundane stuff, you concentrate of the most important job, being his wife, lover and friend.
Being ill and a carer is super hard. I do hope you recover soon. You are a superb carer and no one could have done more than you are dong.
So sorry to hear your Dad has taken a step down. It's damned miserable.
How is your Mum doing? I guess you are supporting her too? You have a lot on your plate. I'm so pleased you have 24 hour care coming in though that must feel bit invasive.
So sorry, Sue. I know how stressful it is. I agree with Anne, although I know that when it came I felt I was not ready to let him go, although I wouldn't hang on to him if he was ready - but I wasn't. You can't love him too much at this stage.
Sue I am so terribly sad to hear this. You are at a low ebb yourself so don't need it now of all times. I have to agree with Anne and Jean. The truth is there is never a right time to let go. You know the truth but your heart hopes otherwise. Just tell him you love him and cuddle him as much as you can. It will help him and afterwards it will help you.
Thinking of you both. If you want to blub that is OK. Try to do it when not around Archie. If he cries then it's OK to share your tears and tell him you love him. Otherwise he might start to worry that you can't manage without him. You need to reassure him now that you will be alright and you will. It's hard but you will do it just as the rest of us have?
We got it straight away when it was applied for which I was amazed by but I think that we me having health problems too when I cannot do much for him I think that helped too
A very difficult time for you ... I am so sorry... I cannot add anything extra to the posts you have already received .... just sending you a bear hug Jxx
Oh what a difficult time for you, hope you start to feel better soon, don’t you just hate psp. I agree with Anne just enjoy your time with Archie. Yvonne xxxx
Thanks Linda it’s a journey that I hope never to see again it’s like living with the unknown but reality is you know this forum has great people who can always get advice from them
Sue xx
Hi Sue,
Everything has been said but wanted you to know I'm thinking of you both.
So sorry to hear this. It is so heartbreaking just watching your loved ones deteriorate. Make the most of every minute and try and remember all the good times xx
You are allowed to crumble even if you are strong for Archie most of the time. If you do not crumble or let off steam you will explode and be of no use to anyone. So although I cannot support you in person please know that you are being supported virtually with love, hugs and prayers and so is Archie.
I remember the time of hospice for my dear Daddy as being... surreal. Like you said you know it's coming but... It still takes us by surprise in a way, somehow. I'm so sorry for your sorrows and your husband's tragedy. You're in my prayers!
You only have a little time with Archie. Just cuddle him for me and give him a gentle kiss on the cheek. They are from myself and my beautiful man Baz xxx
I too am so sorry this time has come. So much wisdom, kindness, love and support comes from these pages. I hope you will find comfort and strength in knowing you are loved.
Now is the time to spend whatever time together and let the others do the heavy lifting for a while. I’m sorry I don’t remember who said it, perhaps Jean, but the words run through my mind almost daily.
“You can never love enough:” So simple, yet so profound.
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Need to vent
Very last stage
Finally posting!
