Hi, I'm new here and welcome any advice or recommendations on PSP, my dad is 75yrs old and recently diagnosed after a 12 week stint in hospital with a delirium from a UTI
Daughter of newly diagnosed PSP patient - PSP Association
Hi there and welcome! My dad is also 75 and started with severe UTI and confusion. That was almost 3 years ago. He was just diagnosed with PSP this past December. In my frantic google searching I came across this forum. It has been a god send. Everyone here is so informative and caring. It is a great comfort talking to others who know exactly what you are going through. Welcome to the group, but sorry you have cause to join.
Hello Concerned and Welcome!
There are lots of experienced and knowledgeable members here. There are so many possible items of discussion re PSP that its best if you ask a specific question (or just post how YOU are.. What your worries are..etc!)
Also, do look up the historic posts/strings: there's a wealth of advice on every subject for 7 years here. (Go up to the search window on upper right hand of the screen, or, post the question/subject in Google and add Health Unlocked to the search.)
Look forward to hearing more from you
Welcome but sorry you had to find the site. You should probably decide who's going to be in charge of your father's needs and get that person power of attorney and something for health care decisions. Also if possible find out your fathers wishes on various life support options. I know it sounds like a lot but I feel it's best to get these things out of the way now so you can concentrate on his care.
Hi there, and welcome. My husband is also 75, but has had P.S.P for I suspect 8 years plus, only diagnosed (when I actually worked it out) 4 years ago. This site is amazingly supportive, it is a godsend. A shame there is nothing like it in Australia where I am. Unfortunately P.S.P is a horrid illness, robbing one of everything except their brain.(in my hubby's case, that is) What stage is your Dad at, symptoms etc. Hugs to you Marg H from Barnawartha Victoria Australia