My husband has PSP and Im finding I would really like to know the answer to these question from others.
Male first onset Age 57 in 2009
Diagnosed at the age 61 in 2013-off all parkinson meds.Takes high blood pressure meds
2018 will be 66 years old, now has had PSP for 9 years
Now in the 9th year ,he is still able to walk with someone behind him
Not completely incontinent but getting close to it
Eye are closed 90 percent of the time
Pretty much a soft food diet
coughing and choking a lot
Still very aware of his surrounding.
Little to no communication.
Takes glycopyrrolate 1.2 mils every 4 hours to help dry up saliva
Dee in BC