This helps w/Parkinson's has any1 tried it... - PSP Association

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This helps w/Parkinson's has any1 tried it for PSP?

GonnaMissDaddy profile image
11 Replies

Am I the last person to hear about this? I wonder if anyone has tried it for PSP. I'm thinking a mobile stationary piece of equipment, with just the pedal part. Anyone?

abcnews.go.com/WNT/video/pa...

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GonnaMissDaddy profile image
GonnaMissDaddy
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11 Replies
NannaB profile image
NannaB

Wow! That looks amazing. My hubby wouldn't have been able to sit on a static cycle because he fell sideways as well as backwards but at the hospice he did use the reclining pedal machine for a short while. Unfortunately it very soon became too difficult for him to get on and off.

X

abirke profile image
abirke

That was awesome. We have to remember that PSP is the nasty brat cousin to Parkinsons and doesn't behave as well.

That being said, I have had my own experiences with B in the water and even on an elliptical. He seems to do well on these but no real transfer of abilities...at least on the elliptical and really can't remember for the water.....last year,he was on a stationary bike which had more of an office type chair and was low er to the ground...but again can't remember if any real improvement otherwise.

At sporting stores you can get just the pedals and the patient can sit anywhere to use them..theis may be a good start to see what kind of response you get!

Good luck

AVB

LynnO profile image
LynnO

Not sure my husband would be able to stay on the bike either. I'd be afraid if he started to lean to the side or backwards their is nothing to hold him up, as sometimes his hands don't have any "gripping" strength at all. When he can, he has been walking as much as possible and that has helped his mobility. So perhaps it works in the same way. I think any kind of movement is a great help. If someone was there to be a spotter for you dad, it might be worth a try.

LynnO

Nanny857 profile image
Nanny857

That was amazing.

Doglinton profile image
Doglinton

Great ! Can't see Chris keeping balanced though. But might be worth a try. Anyone done it ?

Jean

Christine47 profile image
Christine47

Thought you might find this article of interest. And, yes, my husband has used a recumbent stationary bicycle for years. Can't hurt, might be helping. If nothing else, he will have a very healthy heart.

brainfacts.org/across-the-l...

GonnaMissDaddy profile image
GonnaMissDaddy in reply to Christine47

Great article! I read it top to bottom! Thank you.

GonnaMissDaddy profile image
GonnaMissDaddy

Thank you for your replies yall! And my Dad is well past the point of trying to put him on a regular bicycle. I had in mind as others suggested, the type that's just the pedals so he could use it from his lifting recliner. I'm not even sure he'll be able to do even that, at all because he's so weak most of the time. It takes all he has in him to help accommodate his transfer from the lifted recliner to the wheelchair and from there to the bed. But this film makes me wonder if he could do just a little pedaling each day, if he could miraculously regain any of his lost abilities. Hoping to purchase this soon and will definitely report any findings here.

abirke profile image
abirke

Have you tried this yet? Please tell us the outcome if you notice a difference.  If there is a difference, maybe you could video it!

AVB

Jotro profile image
Jotro

I go to a gym and it works well for emotional and physical fitness. Going on fourth year of PSP with first correct diagnosis last summer. Still walking, bending,etc.

Jotro profile image
Jotro

Sorry, phone call interrupted my message. Most folks at the therapy hospital use machines that let you turn with arms only, stationary bicycles, and treadmills. I use resistance training machines because my gait stinks and these machines allow me to exercise while seated. There are lots of machines that allow you to pedal. Just hold on to the fixed handles. Good luck with your shopping for a suitable device for your home. Use the Internet. Best wishes, John in Pennsylvania.

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