shouting out

[tony890]

Hi all my mother , was diagnosed with psp , three months ago . after five years of trying to find an answer .

mum is now confind to bed , currently in hospital, allthow mum is on pain killers

and pain patches , mum is constantly shouting out , and has had to be moved to a single room , idont think she is in constant pain , is this comman with psp .

As mum is shouting ,it is making it difficult to find a nursing home to take mum on.

and has been in hospital for three months ,

regards tony890

[easterncedar]

So sorry, Tony. I have heard of folks going through periods of involuntary vocalization, often moaning, but nothing so loud that lasted very long.

[tony890 in reply to easterncedar]

Thank you easternceder.this has gone on fo two months now,

Best regards tony

[Kevin_1]

Hi Tony

I am so sorry to hear this.

The question might be why is she shouting out.

Is she anxious?

Angry?

Feeling unheard?

The reason I say this is that my wife was in a Nursing Home and her behaviour was so demanding and difficult they could not cope and we had to find another Nursing Home. To some degree it is often the lack of staff time to be with someone and calm them.

Sometimes a small dose of an anxiolytic like Citalopram can help. Heavy sedatives such benzodiazepines are best avoided unless really necessary IMHO.

Are you in the UK? If so the CCG should be assessing and finding a suitable place. Just ask he Ward Manager to arrange a CHC Assessment.

I hope this helps.

Best

Kevin

[tony890 in reply to Kevin_1]

Hi kevin

Thank you for your reply, yes mum has had CHC assesment and is NHS funded.

Had some news yesterday, for an EMI nursing home, hope to have a disition today.

will look into anxiolytic ,thanks for your help.

All the best tony

[Kevin_1 in reply to tony890]

Good luck

All the best

Kevin

[Esra]

Deat Tony,

My mom has also psp for mote than 11 years.

This shouting out is happened in this disease. When my nom faces this, we use RIVOTRIL drop form ( brand name)

We use this drug three times a day in order to get rid of her spasm and shouting. 5 drops Rivotril ( clonazepam) is used each time.

I think this drug will help your mom and you.

Best Regards

Esra

[tony890 in reply to Esra]

Thank you Esra, kind regards tony.