Barry passed away on Friday 3rd November at 11.45.
Through all of our 41 years together it has got to have been the hardest 2 months.
I was unable to care for him at home, so it had to be a nursing home. Everyday I was with him for at least ten hours everyday. For the last five days I never left him alone. I was even given a guest bed to stay in his room with him.
I have never in my life met such a caring bunch of staff. Nothing was too much trouble. They all knew the end was very close and they each, all and everyone of them came to say their goodbyes on the Thursday. Even those that were off work.
So my darling is now free of this dreadful disease
Deb x
Written by
nakkdo
To view profiles and participate in discussions please or .
I'm sorry to have to read your post Deb, but as you say, he is now free of PSP. Make sure you look after yourself, right now you need it. Take your time...
Deb I am so very sorry you have lost Barry. However he is now free of the awful disease. May he rest in peace. He has certainly earned that peace as indeed all our loved ones have. I know how hard this is as do so many of us.
You need to think of yourself now Deb and try to get as much rest as you can.
I am so sorry for your loss.I know from experience how lonely that feeling is but at the same time feeling relieved that his battle is over.Take care of yourself !
So awesome that you felt Barry was so well cared for till the end. Now comes a new hard part for you, allow your self to grieve your loss and care for yourself.
I'm so sad to hear this. Sorry I'm late in answering, dealing with pneumonia and now UTI with Charles. You and Barry are free of this but know I'm thinking of you with love.
You did it right all along. Hardest thing we'll ever do.
Please keep posting, it helps to guide the rest of us.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.