PSP Association
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What a difference a day makes...😢

So mum has been doing relatively well all things considered but in the last few days it is proving almost impossible to get her to take her medication or eat. Just a small sip of water/juice results in her choking 😢 why do our loved ones have to suffer so.... I myself feel like a gunpowder keg ready to explode. We are all trying to hold it together for the sake of mum. God bless you all. Xx

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Yes, I know how you feel.

Chris decided it was time to stop eating because it isn't going to get better.

Big hug for you, Careeen, from Jean xxx

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I know the feeling it is so hard, George still eating and drinking, but coughing and choking horrible. Jean how you doing? Xxxxxx

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Its so distressing for you both Yvonne.

I am in a daze - organising funeral and responding to phone calls. Then emptiness to deal with. ie. emptiness without either the " husband Chris " or the "patient Chris ". Just me after 55 years.

Thank goodness for this site where I can say this and everyone understands.

xxxx

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Jean I know the feeling so well. Horrible! Tomorrow is our wedding anniversary, the first alone. You can imagine the way I feel.

Marie x

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I'm dreading those occasions. Big hug, Marie,

love, Jean xx

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Jean thank you. That means a lot you know? You are so kind. I like Yvonne's idea! One of these days eh?

The only good thing about it is knowing the one you loved is finished with the awfulness of this condition? That cheers me up when I think of it. So tomorrow after I cry and I will...then I will be glad for G's sake that he is finished with all the suffering.

God bless you Jean.

Marie xxx

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Oh Jean send you a massive hug, wish we could all sit down with a cup of tea and a big slice of cake. Feel like we have all travelled this journey together, but at different stages. Big hug Jean you have been amazing. Yvonne xxxxx

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Oh honey, I think of you so much. Hang in there.

Cuttercat

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Careenh I am so sorry to hear this. Make the most of the time you have left with your Mum. You have probably read it before but just in case...remember she can still hear. She is also Mum just in a body that isn't working the way it should. Tell her you love her and give her lots of cuddles she will appreciate it. You will be glad you did too.

Love and hugs to you.

Marie x

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Thank you Marie. I know she can hear me.... I tell her I love her all the time. She is my inspiration and my best friend I wish I could take this all away from her. Xx

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Oh Careenh that is such a lovely thing to say. Your Mum has been one of the unlucky ones to get this condition but she was so lucky to have such a lovely daughter.

She will at least have the knowledge of that when she leaves this earth? I think you have given her the greatest gift of all.

Lots of love and hugs to you.

Marie x

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